Hi there
I am new to this so not sure what to expect really but here goes!!. Have been reading all other posts and feel it is time for me now too.
I am 34, I have an only daughter of 14 and my husband works away in Merchant Navy.
We have just found out after 2 years that my young mum of 58 has FT lobe dementia, or that is what they think, she has been for an MRI scan last week and we should get the results to confirm this dreadful illness.
She still knows me can still do lots of things, but gets words mixed up every time she speaks, she is very muddled and it can sometimes be very frustrating. She is not able to drive and finds it hard to be motivated, also she wears the same clothes day in day out and doesnt realise it, it makes me very upset to see this, as she was such a capable lovely mum before.
I know I should go and visit more often, but feel that when I arrive she has nothing really much to say and never remembers that I have been. I always run out of things to say. I feel guilty daily about what I should be doing, but feel I cant do anything that will help. There are no brothers or sisters to take that guilt away even if just for a few hours.
I know I should be greatful that she can still do many things and this is just the start of a very long road, but I miss my mum, we used to be so close.
My dad is throwing himself into work as a coping mechanism and doesnt want to be there, she accuses him all the time of having an affair and he is finding it very hard to deal with, as it is all very new to us, even though she has been like this for sometime, they said it was depression for a while, but reading about Front Temp lobe dementia tells me thats what it is she has.
It would be great to hear from anyone, as I just feel so alone at this moment in time.
Thanks for listening
Natasha x
I am new to this so not sure what to expect really but here goes!!. Have been reading all other posts and feel it is time for me now too.
I am 34, I have an only daughter of 14 and my husband works away in Merchant Navy.
We have just found out after 2 years that my young mum of 58 has FT lobe dementia, or that is what they think, she has been for an MRI scan last week and we should get the results to confirm this dreadful illness.
She still knows me can still do lots of things, but gets words mixed up every time she speaks, she is very muddled and it can sometimes be very frustrating. She is not able to drive and finds it hard to be motivated, also she wears the same clothes day in day out and doesnt realise it, it makes me very upset to see this, as she was such a capable lovely mum before.
I know I should go and visit more often, but feel that when I arrive she has nothing really much to say and never remembers that I have been. I always run out of things to say. I feel guilty daily about what I should be doing, but feel I cant do anything that will help. There are no brothers or sisters to take that guilt away even if just for a few hours.
I know I should be greatful that she can still do many things and this is just the start of a very long road, but I miss my mum, we used to be so close.
My dad is throwing himself into work as a coping mechanism and doesnt want to be there, she accuses him all the time of having an affair and he is finding it very hard to deal with, as it is all very new to us, even though she has been like this for sometime, they said it was depression for a while, but reading about Front Temp lobe dementia tells me thats what it is she has.
It would be great to hear from anyone, as I just feel so alone at this moment in time.
Thanks for listening
Natasha x