For us rather than the government awarding financial benefits, funded, accessible and specialist dementia day care that fits in with carers' working hours would be greatly received.
GOVERNMENT RESPONSE TO PETITION
- Thread starter maryjoan
- Start date
That is a very good idea DennyD - I felt so abandoned when I had literally 3 days notice that my very ill partner was coming home after life saving surgery had accelerated his dementia. No advice, no support - so I acted on gut instinct and closed my business down - and have felt manipulated ever since........
Day care would be great too. There is a subsidised Day Centre in the town near me. Dementia specialised. Subsidised, costs €12 per day. Unfortunately, my husband went twice, and refused to go back. A Day Centre just didn't suit him.
I have just finished caring for my mother, who died recently. Now being a'free agent my partner and I were considering getting married (been together since the 80s although he maintains his own small rented flat, though rarely in it). Although I have not said a word to him about it there is something that I think I should consider. We would live in a house that is in my name, bought and paid for by me. Being very simplistic and not looking at all the financial implications etc so only looking at it in its shallowest form, let's leave aside the 50/50 split of monies govt would expect if he needed care etc.
At the moment I could (not saying I would) simply walk away. If we were married then I couldn't. Looking at how many more couples stay unmarried these days, I think it is something the govt must consider before blithely saying that we 'choose' to care. Obviously I may be the one needing care and a whole new can of worms is opened but I don't think governments (whoever is in power) think these things through properly.
Willing to have my head shot off my shoulders for above comments!
At the moment I could (not saying I would) simply walk away. If we were married then I couldn't. Looking at how many more couples stay unmarried these days, I think it is something the govt must consider before blithely saying that we 'choose' to care. Obviously I may be the one needing care and a whole new can of worms is opened but I don't think governments (whoever is in power) think these things through properly.
Willing to have my head shot off my shoulders for above comments!
I agree with you totally - Various Governments do nothing but look at the way they can save money on care ( carers as well) In your situation, you need to consider all your options. After the experience with your mother, you know what it's all about - so I am sure you will think it through carefully and come to the correct decision for you both.....
Good Luck
i am 61 mum just past away at 86 .I had already given up work so things came in to place for me to care for mum in that respect i was lucky.I state the obvious i know, but for family's that have taken care of there finances pay the price now in later life (but we have a social system so i accept we need to help all that are suffering).i had to use mums pension to get by as if not the state take it back as no doubt many do,always felt guilty and still do.After her passing i just got a bill (always in arrears) the LA cost for her carer went from £60/week to £136/week.means tested from over 2 years ago .we all see elderly care is now linked in to community charge but still they hit us .so unfair i am in dispute so watch this space x
I know - caring can devastate families in so many different ways, not least financially - cruel
