bel said:
---sorry to be crude i need a kick up ---
No Bel, that is the last thing you need. I'm sorry I haven't replied before but I've been down in the dumps myself.
I don't know if you know, but loss of language is John's main problem, and yes, it's very hard to deal with. John can't read or write, understand TV, understand a lot of what I say to him, or say what he wants to say.
And the intelligence is still there, he knows what he wants to say, and gets so frustrated. He also sometimes thinks I'm being awkward when I can't understand him. He also gets very bored.
You have to accept that Bob is not going to get any better, in fact he's going to get worse. So you have to look for survival techniques for yourself. Try to get out, go to places where you can talk to people -- clubs, adult education classes, anywhere where you can talk. Otherwise you'll just get more and more depressed -- I did, until I got carers to stay with John while I went out.
That's enough for now. I just wanted you to know that I understand what you are going through, and I know how hard it is to cope with.
I'll try to reply to any questions you have to ask.
Love and hugs,