Hi
@Muggles and
@Welshblack thank you so much for your answers - I'm so sorry to hear you have the genes, but your answers have helped me be more positive about it. I didn't know you could ask for it not to be on your medical record - is that because you had the test done at UCL rather than within the NHS and will they tell you the result they just won't store it on the medical record? How did you both get involved with UCL? Someone has forwarded my details to a Dr Jon Rorher and hopefully I'll get to have a chat with his team before I make any decisions on the test, I believe he might be at UCL actually.
@Welshblack I haven't actually found the genetic counselling very informative about the negative implications of a positive result, they told me essentially there is a moratorium in place (currently until end of 2019 but is normally extended every couple of years or so) on insurance companies that they could not ask you outright about whether you had a genetic test (as long as the amount covered was below a certain amount) but that I should get whatever insurance I wanted before, as although they can't ask me, there is a section where you can disclose information, so it might fall back on me if I didn't disclose it voluntarily when buying the product, and for mortgages they said I'd need to speak to the solicitor at the time to get advice.
Have either of you had reason to regret having the test (apart from obviously knowing!), such as being treated differently for financial loans etc?
Thank you both x