Hi Fellow nightmarers |!!|
As some of you already know i tend to dip in out of this, but thank you to all for your posts, i read more than i post/comment on and some of the stuff i read really helps or i can sympathise with as we are all going through this dreadful journey in our own time, at our own pace and with our own different version of events !! Some of it proper breaks my heart or scares me to death!!
I have a question re something called (and i think this is what she called it?? and due to the fact i questioned my OH score in his last ACE test, as he answered so many questions wrong or didn't answer at all but only scored a diff of 2 points from 62 just 6 months ago to 60 1 month ago and i have seen quite a significant decline in the last 6 months) Alan's Test which involved a lady, referred from the memory service and called herself OT) who came here last week with a piece of kit that resembled a hide of some kind with holes around the edge, to which he was shown how to 'sew' he was tasked with completing three different 'stitches' running stitch, over stitch, and i cant remember the third one ?? (not that it matters) which apparently gives a snap shot in time of where his dementia is at that point !!?? She is coming back nxt week to reveal results ?? My question is - has anyone else had any experience of this? does it prove anything?? and is there any specific things i should be asking this woman which would give me any further information?
The slope we on right now is significant and doesn't seem to be leveling out he is 3.5 yrs post diagnosis, (with maybe 12/18 months prior problems??) has anyone else experienced a slope like this without any underlying probs like infct ect?? He has deteriorated quite a bit in the last 6 months to the point of not knowing his family or that this is our home, to who i am most of the time ......
on the pos side he has had his 1st outing today with a carer ..... (and he didn't tell him to DO ONE !!) nxt week we have a free session at a day centre which i have to go with him ............ not sure how thats gonna go ??
Thanks for reading and i look forward to your responses and advice
Terri x
As some of you already know i tend to dip in out of this, but thank you to all for your posts, i read more than i post/comment on and some of the stuff i read really helps or i can sympathise with as we are all going through this dreadful journey in our own time, at our own pace and with our own different version of events !! Some of it proper breaks my heart or scares me to death!!
I have a question re something called (and i think this is what she called it?? and due to the fact i questioned my OH score in his last ACE test, as he answered so many questions wrong or didn't answer at all but only scored a diff of 2 points from 62 just 6 months ago to 60 1 month ago and i have seen quite a significant decline in the last 6 months) Alan's Test which involved a lady, referred from the memory service and called herself OT) who came here last week with a piece of kit that resembled a hide of some kind with holes around the edge, to which he was shown how to 'sew' he was tasked with completing three different 'stitches' running stitch, over stitch, and i cant remember the third one ?? (not that it matters) which apparently gives a snap shot in time of where his dementia is at that point !!?? She is coming back nxt week to reveal results ?? My question is - has anyone else had any experience of this? does it prove anything?? and is there any specific things i should be asking this woman which would give me any further information?
The slope we on right now is significant and doesn't seem to be leveling out he is 3.5 yrs post diagnosis, (with maybe 12/18 months prior problems??) has anyone else experienced a slope like this without any underlying probs like infct ect?? He has deteriorated quite a bit in the last 6 months to the point of not knowing his family or that this is our home, to who i am most of the time ......
on the pos side he has had his 1st outing today with a carer ..... (and he didn't tell him to DO ONE !!) nxt week we have a free session at a day centre which i have to go with him ............ not sure how thats gonna go ??
Thanks for reading and i look forward to your responses and advice
Terri x