1. Intelnublett

    Intelnublett New member

    Jun 7, 2019
    6
    I'm relatively new to this forum but am glad I found it! I am 47 years old and have had FTD for at least 7 years now. I live in the US and have noticed that FTD seems to be better known in the UK and Europe and I have to explain to my doctors and others what FTD is and how it affects me. I think I have been lucky in that I have been able to live a somewhat normal but albeit fractured life so far but I am starting to feel that the disease is starting to progress faster than before. I find it more and more difficult to explain how I am feeling to my family and doctors and even to myself sometimes. I think the worst part of FTD is I am better able to identify what is happening to me!!!
     
  2. Shedrech

    Shedrech Volunteer Moderator

    Dec 15, 2012
    8,309
    Yorkshire
    hi @Intelnublett
    I wonder whether this site may be helpful to you ... I appreciate it's UK based but I guess you can contact them from the US, although attending any meetings may be a commute too far
    http://www.raredementiasupport.org/
     
  3. nitram

    nitram Registered User

    Apr 6, 2011
    19,532
    Male
    North Manchester
  4. canary

    canary Registered User

    Feb 25, 2014
    11,106
    Female
    South coast
    You might find The Association of FTD, which is based in US, helpful.
    I think it gives details of resources in different areas of US too.

    https://www.theaftd.org/
     

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