Front lobe dementia
- Thread starter kezzahana
- Start date
Yup, I'm afraid so. My OH just at the last stage of being " rubber stamped", but no doubt he has bvFTD. My advice is to read everything you can get your hands on - lots on this site and on the web generally. There are also a number of people here who have posted over time - again search on FTD and you will be able to link with others.
I would be interested to hear the circumstances of your referral if you are willing to share, as this may be of help to me and to others too, of course.
We are a good support network and there is always someone listening, so I hope you find some help here. Loving thoughts to you and your OH X
I would be interested to hear the circumstances of your referral if you are willing to share, as this may be of help to me and to others too, of course.
We are a good support network and there is always someone listening, so I hope you find some help here. Loving thoughts to you and your OH X
Thanks for the advice I am reading as much as I can.
I saw my doctor in Jan and told showed him some emails that my OH had written and the words were all jumbled about and rambling with no punctuation. He then asked him a series of questions from a questionnaire and some questions he didn't even understand or spell words correctly. From that he said he needed to refer him to a neurologist. The Neurologist asked him to do simple things like raise legs, put head on shoulder and my OH didn't understand so he said he wanted to send him to Kings hospital in London for further tests. He had an MRI scan, EGG, Lumbar puncture and an assessment. From that we just found out he has FTD and is being referred back to Kings to see a specialist in October
Can I ask how what your OH is like?
I saw my doctor in Jan and told showed him some emails that my OH had written and the words were all jumbled about and rambling with no punctuation. He then asked him a series of questions from a questionnaire and some questions he didn't even understand or spell words correctly. From that he said he needed to refer him to a neurologist. The Neurologist asked him to do simple things like raise legs, put head on shoulder and my OH didn't understand so he said he wanted to send him to Kings hospital in London for further tests. He had an MRI scan, EGG, Lumbar puncture and an assessment. From that we just found out he has FTD and is being referred back to Kings to see a specialist in October
Can I ask how what your OH is like?
Sorry I have not responded Kezzahana. All a bit too much going on for me to be on here for the pasts few days. Just acknowledging your reply now and I will be back again shortly with some more for you. Sorry.
In the meantime: If you check through my posts under my name, you can read everything I have written about what is happening to my OH and us.
Loving and supportive thoughts from me to you X
In the meantime: If you check through my posts under my name, you can read everything I have written about what is happening to my OH and us.
Loving and supportive thoughts from me to you X
Here is a good factsheet:
http://www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=167
http://www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=167
Hello again Kezzahana. Where does all this time go? Apologies I am only just catching up. My OH started with behavioural changes, mainly, over the last two and a half years. These have increased in number and intensity during this last six months, even though he has been forced to give up work and we have sold our house to reduce costs and thereby relieved him of any unnecessary stress. He no longer drives. He has lost much of his empathy towards me and is very unmotivated. He is no longer able to plan and organise although his ability to read and write, along with his memory are relatively unimpaired. He has angry outbursts and make inappropriate remarks. Any new situation or places with a lot of people confuse him and he becomes fearful and insecure. He depends on me completely and I am unable to leave him, so my life is now lived only through and around him. His food choices have changed immeasurably - he loves sweet things now and would eat burgers and chips at any time. Something he would never have even contemplated once upon a time. He is very childlike at times and cannot comprehend certain things. It is because he has no language or memory problems that he is diagnosed as behavioural variant FTD.
I hope this helps you to know you are not alone - unfortunately there are many sufferers. I guess that your referral to a Neurologist at Kings will bring a lot more clarity to your own situation. Like all things, AD in all its forms, affects each individual uniquely. What is not unique is how grim it is and how devastating its path. It's a hard road as I am sure you realise, but we trudge along it because we must. You have support here, believe me. Just reach out and you will see. Keep posting, I shall look out for news of your journey.
Loving thoughts to you and your OH X Shelagh
I hope this helps you to know you are not alone - unfortunately there are many sufferers. I guess that your referral to a Neurologist at Kings will bring a lot more clarity to your own situation. Like all things, AD in all its forms, affects each individual uniquely. What is not unique is how grim it is and how devastating its path. It's a hard road as I am sure you realise, but we trudge along it because we must. You have support here, believe me. Just reach out and you will see. Keep posting, I shall look out for news of your journey.
Loving thoughts to you and your OH X Shelagh
Yes I was at first diagnosed with Alzheimer’s in 1999 aged 57 after a PET (Positron Emission Tomography): brain scan in March 2003 the diagnoses was given as Fronto-temporal- dementia the PET brain scan was repeated in 2004 the FTD didn’t stop me from continuing to work for a further eight years until my retirement at age of 65 in 2008 it will be 15 years in November this year since my diagnoses and I’m 71 now I still drive every day also drive when on holiday in Spain no problems basically I still live a fairly active life I became a member on T’P in March 2005
Tony
Tony
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Delighted to know you are so "well" Tony; long may that be so! X
Thank you Rathbone
so long as I don't worry about it and keep taking the medication Cheers Tony xx
OH just completed final stage assessment and definitely bvFTD diagnosed. No medication/treatment available. Appt arranged with Neurologist to see if help possible for probable future escalation of mobility issues.X