Fix Dementia Care - letter to the new PM

Discussion in 'Alzheimer's Society notices' started by HarrietD, Jul 23, 2019.

  1. HarrietD

    HarrietD Administrator
    Staff Member

    Apr 29, 2014
    4,883
    London
    Hi everyone,

    You'll probably have seen the stories in the news over the last few weeks about the enormous costs of care affecting people with dementia and their families. Our estimates put the figure at almost £15 billion spent over the last two years.

    Now that a new Prime Minister has been announced, we are standing with people affected by dementia by letting him know that the dementia crisis cannot be ignored any longer. We refuse to allow the broken system to continue - it is unfair, unsustainable and in urgent need of reform.

    You can back our letter to the Prime Minister, asking him to #FixDementiaCare as an urgent priority, by adding your name today. If you'd like to do this, all you need to do is click below and you'll be taken to the letter.

     
  2. Jaded'n'faded

    Jaded'n'faded Registered User

    Jan 23, 2019
    426
    Female
    High Peak
    Hi @HarrietD ,

    I have signed the letter but have to say I thought it was a bit wishy-washy! I found it a bit vague - not strongly-worded enough and not really spelling out some of the current problems.

    I would have liked to have seen something more specific, perhaps with bullet points and/or suggestions for ways forward rather than what seems to me a rather easily-ignored cry for help.

    Just my opinion and no offence intended - I just expected something a lot stronger :(
     
  3. Beate

    Beate Registered User

    May 21, 2014
    11,696
    Female
    London
    He's not going to listen so don't waste your breath. Plus I agree - the letter doesn't spell out clearly what you actually want. Boris isn't a details man.
     
  4. Normaleila

    Normaleila Registered User

    Jun 4, 2016
    661
    I'm not sure what you're asking for. Daily Mail and rest of MSM make out that it's just about saving the family's inheritance. Rosie Boycott (a patron?) repeats that dementia is the only illness that is not fully funded. Wouldn't it be better to look for allies rather than pretend dementia is unique?
     
  5. Louise7

    Louise7 Registered User

    Mar 25, 2016
    1,150
    I think they're asking for £2.4bn from the next budget for a new 'dementia fund': https://www.alzheimers.org.uk/get-involved/our-campaigns/fix-dementia-care

    Looks like the letter might be in support of a 'dementia fund' plan that has already been put forward but I agree that it should be more specific about what is being asked for, for the benefit of those who are being asked to sign it.
     
  6. Bunpoots

    Bunpoots Registered User

    Apr 1, 2016
    2,910
    Nottinghamshire
    I’ve signed
     
  7. reedysue

    reedysue Registered User

    Nov 4, 2014
    4,591
    Scotland
  8. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    69,343
    Kent
    Signed

    Happy with the content especially paragraph two
     
  9. Cat27

    Cat27 Volunteer Moderator

    Feb 27, 2015
    10,167
    Merseyside
    I’ve signed.
     
  10. Izzy

    Izzy Volunteer Moderator

    Aug 31, 2003
    59,437
    Female
    Dundee
    Signed.
     
  11. HarrietD

    HarrietD Administrator
    Staff Member

    Apr 29, 2014
    4,883
    London
    Thanks everyone who's signed so far, and thanks @Jaded'n'faded, @Normaleila and @Louise7 for your specific feedback. That's really helpful and I know the team will appreciate it.

    On that note, if anyone has any questions or feedback, please email the team who is running this campaign at: change@alzheimers.org.uk
     
  12. jaymor

    jaymor Volunteer Moderator

    Jul 14, 2006
    12,455
    Female
    England
    I signed yesterday
     
  13. Stripey3

    Stripey3 Registered User

    May 29, 2019
    21
    Signed and shared
     
  14. Loisand

    Loisand Registered User

    Dec 25, 2017
    128
    Signed and shared via facebook
     
  15. PJ

    PJ Registered User

    Jan 26, 2017
    310
    Female
    Bristol
    Signed & shared on FB
     
  16. DesperateofDevon

    DesperateofDevon Registered User

    Jul 7, 2019
    669
    Signed & shared on Twitter
     
  17. Wifenotcarer

    Wifenotcarer Registered User

    Mar 11, 2018
    231
    Central Scotland
    I have signed the letter, although I am aware that the situation re funding of Dementia Care is different in Scotland (and Wales too?) but hoping that extra funding would be shared UK wide.

    Also could you explain how to share this on Social Media?
     

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