The Alzheimer's Soc. can't even spell it!
I have just seen 'restbite' on the home page.
I know I am a pedant, but honestly, this sort of thing on the official home page of a major charity does make me despair.
I don't think spelling is pedantic, it's basic.
Caring is a labour of love for my dear wife Maureen. She has vascular dementia following stroke and I do my best to attend to her needs without resentment.
A couple of weeks ago one of our carers mentioned a local arrangement where I am entitled to a weeks respite every couple on months. She indicated that this is funded by Adult Social Care. So I am on the case: progress is painful and it has been difficult to achieve a night off at the moment.
Followers of my thread: 'News from Cleethorpes' will note that authorisation for a night sit for Monday has missed the Care Agency deadline for organising their staff rotas. It's hard work to establish my entitlement to respite but it is something I just have to sort out. Maureen deserves her husband to be fit to give her the care she deserves. I will provide updates of 'progress' on this thread next week.
I downloaded and read the Alzheimers Society manifesto for the election and was disappointed that there was nothing to specifically deal with the needs of carers. Did anyone else feel the same?
I downloaded and read the Alzheimers Society manifesto for the election and was disappointed that there was nothing to specifically deal with the needs of carers. Did anyone else feel the same?
I think the AS has a conflict of interest here, which has become apparent to me recently. Certainly, I received much more proactive help when I rang the Prostate Cancer charity about my dad's cancer, than I did when I spoke to someone at AS about his dementia. The fact is, the AS exists to help and concentrate on the sufferers. I don't think that we, the carers, really feature very highly at all in their schedules or priorities. They are busy telling the world to befriend people with dementia so they don't become isolated; we know the reality of how very 'unfriendly' moderate to late-stage dementia sufferers are. They are all for pushing photos of sweet forgetful grandparents; we know the poo-smeared, paranoid, hurtful doppelgangers who take over those once-loved bodies.