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Discussion in 'I care for a person with dementia' started by Ann Mac, Mar 12, 2015.
Sounds a good idea to me. I even had a similar thought last night.
As bed blocking is such a buzz word at the moment might I suggest you also make reference to carer burn out, not only the carer but the one they care for ending up in hospital could be the cause of bed blocking.
Another valid point, Lemony - and yes, it should be included.
Has anyone else any idea's, about content or wording?
Some suggested content - just headings as words need tweaking.
Beds per capita - now and previously
Do they have beds / commission beds. If not, why not / did they previously? If they did, why change (and when) and what was previous level of occupancy.
All of this information can be obtained with a Freedom of Information request but it would be reasonable, in my view, to ask in the normal way first then go down the FOI route if it's not forthcoming.
We would have to be quick of the mark to ensure that you get any sort of response before the election. Actually this subject is quite a good Dissertation subject for a social work student...no ethical approval required too ..as it is information gathering.
On the care home chain that does bookable respite - not mentioning the name - that didn't apply to their branch in my area they were unable to take a booking two months in advance.
Interestingly of course the care homes have it completely stacked their way in that the the organisation 'The Care Journey' acts a clearing house for them so that they will pass you on to an another company if they cannot fulfill your request from their own company's homes.
I will contact Manchester and find out what their position is. I will do so via the social worker and my local councillor rather than through the head of social services. I would actually like some respite in June or July.
I was incensed when one example of bed blocking given was when the family would not take patient in until they had installed a wet room. How pathetic is that...not to support someone clearly making steps to ensure a return home is successful. When my MIL was got out of hospital...she went straight back in within 48 hours because she could not manage.
Was swotting up on local care homes last night. One said they offer respite care for as little as one night. Guess where I'm going tomorrow!
Congratulations, Ann, and good luck with the campaign. You've been brilliant thus far.
I was s-o-o lucky that the care home in Mother's village took respite bookings, so in the 4 years of abandoning normal life to come and live with Mother to care for her we could at least have some planned holidays (though sometimes had to tailor the dates round other bookings as they only had the one respite room). But twice we had to scrabble round to find somewhere else - once they gave back word on a long-standing booking because they'd accidentally double booked, once we neede to get to a funeral at zero notice) and it was very stressful though fortunately good LA care home not too far away could take her. But Mother was only relatively mildly affected by her Alz - still a nicely-behaved 90+, just confused and with no short term memory, so was relatively easy to accommodate. But couldn't ever have been left on her own overnight.
But bookable respite for carers is absolutely essential. Without it, I'm afraid we'd have moved Mother into a care home within months of Father's death: not least to save our marriage. Not fair on husband to deprive him of holidays and even just weekends away just because my Mother needed our care. It must be desperate for people with children, who have every reasonable expectation of being able to have a family holiday.
Good luck to all in our campaigning on this. It's so important in making life tolerable for carers and their families, and preserving their mental health, and making the whole caring thing doable.
Link to Radio5 corrected
I just followed that link and it led me to the programme on Fri 13th - also about dementia. I found your splendid input on Thurs 12th on this link: http://www.bbc.co.uk/programmes/b054p0cx . You were brilliant.
Well done, Ann. You did a great job on 5Live.
On Radio 4 in recent days, they've been heavily promoting the fact that they want to hear from Listeners about issues they'd live to see raised within Election coverage. Worth a pop at Radio 4 too?
Details are on the BBC Radio 4 homepage. (Sorry... Can't post a link as I haven't made 10 posts yet)
Manchester City Council has no bookable respite beds
Well just to confirm that I requested respite bookable in advance so I could go on holida and was told Manchester had no block booked beds. They were not aware of people having any problems in booking respite in the private sector.
I also reported the non-functioning website.
I have to report that I was phoned back quickly by the duty social worker in less than 24 hours after I contacted them by e-mail.
I am going to ring my SW this week to see if there are bookable respite beds in my area.
Thanks Amelia - will be contacting radio 4
Mancmum, thanks for that - its would be a massive help if anyone who was able could post on this thread what the situation, re:availability of bookable respite, is in their area - give us a smidge of an idea just how widespread this issue is.
Nothing from LA here yet, though I guess it is early in the week - I'm trying to carve out time to get something written that could be a 'template' that all who wanted could use to raise the issue wherever we can. With all those in 'authority' that I've dealt with, there has been a tendency for me to query availability and them to reply by blethering on that 'funds are available' and sidestepping the main point - I want to find the right words to make sure that there is no option for a response like that in what I am writing!
Ann, would it be helpful if we all put together some sentences and sections and pm'd them to you so that you could tweak them into the core of a letter?
The reason I am suggesting pm rather than here is that sometimes, seeing others have written xyz will make some people feel "Oh I probably can't do better" when, in fact, starting with a blank sheet and personal experience, they might just come up with the ideal phrase.
I will hopefully get some time after lunch and will do some then if that would help.
Take care x
That would be fab, Celia - yes please! I want to make sure that I get everyones input, and cover all the associated issues and concerns - scared I'll miss something out or phrase it wrongly !
Talking to one of the senior carers at Mum's about this and he asked if we were using Instagram? I think I have an account but don't use it, anyone here an Instagram whizz?
This website provides a direct link to your elected representatives.
It will automatically direct e-mail to the right people.
Its a useful resource. Well it is if you have decent councillors.
When you come up with a letter should this be reposted in the campaigns area?
Emergency respite - scotland
I have just been reading through this thread and am in the situation of needing emergency respite care for my mum as she live alone and has started wandering. The only option my SW could give me for emergency respite was 2 privatly owned homes, which were TOTALY unsuitable. This was offered because the small amount of council respite places were full. I believe these 2 private homes had bed spaces because no one would want to put their relitive in there. I have called round many other private homes in my area that advertise on their web pages that they do respite care to then be told 1) its a miss print! 2) why would they if they could put a full time person in?? So actualy no one seems to have respite. I have been told by my SW that if mum was to wander again they may have to take it out my hands and put her in one of those horrific places for the short term untill a suitable full time place comes up. Yes i am worried sick.
Now on another note, i have pre booked respite before for a short break, I had to push to book 6 months before to ensure a placement. The respite was in a LA home which in my area the LA Homes are by far supperior to any private homes i have seen in every way. Mum thought she was in a fancy hotel, and her experience was very positive.
There are not nearly enough quality respite places to be had.
And in my mind care and respite care should ONLY be run by the LA, as some things in life like care should NOT be up to make profit out of to line someones pockets. Any profit made should be put back into the system, keeping the standard of care up to a high and equal level in all homes.
Rang my SW today (she isn't anymore, spoke to someone else grrr!) she said I had to ring a company (I know they deal with direct payments...) they directed me to a list on their website. Shall try ringing some of them next week as away for 3 nights from Thursday & super busy tomorrow. I don't need respite yet but will soonish (who knows when, how long is a piece of string!?!)
I will let you know how I get on.
Vintage..remind them of what happened down in Hartlepool. The care home beginning with P
Story is here
If anything happens to your mum tell them they are personally responsible.