Feeling quite emotional today not sure why!!

Discussion in 'Younger people with dementia and their carers' started by Beannie, Sep 2, 2015.

  1. Beannie

    Beannie Registered User

    Aug 17, 2015
    94
    East Midlands
    Hi everyone

    Not quite sure why I feel so emotional today. Think it is because it is my OH's birthday tomorrow (he will be 62) and never in my wildest dreams did I think 12 months ago he would be in permanent care. We were always going to retire when he was 62 and then travel together to far flung places such as Australia and New Zealand and celebrate his 62nd birthday by going across America from East to West by train.

    He only went into care 6 weeks ago so I suppose it is all quite new and raw. We are having his birthday meal tonight as my brother, who lives a long way away, is up here, staying with my 93 year old mum for a few days but has to go home tomorrow morning. I thought I was getting used to OH being there but I am finding it hard to sleep again as that 'old guilt monster' keeps rearing its head and I keep thinking of the what if's.

    I am also worried as both my OH's sisters, one is 68 and one is 55 have been diagnosed with early onset Alzheimers Dementia one 4 years ago and one this year and my OH and I have a 29 year old daughter. I have been googling this and the words familial Alzheimers keeps coming up and I am so worried my daughter will be afflicted by this terrible disease later in life!! His older sister is also awaiting results of a brain scan to see if she has Lewys Body Dementia as well. This is all the more worrying as my OH has Parkinsons Disease as well as Alzheimers Dementia, diagnosed as separate illnesses. I also think the approaching Autumn/Winter days and nights are getting me down, as my favourite season is the Spring when we have daylight until 10pm. This will be the first winter my OH is not living here and of course because we are self funding I am having to watch the pennies.

    Thanks for taking the time to read this.
     
  2. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    69,537
    Kent
    Hello Beannie

    It sounds as if you are in the midst of the most traumatic time, as if dementia is all around you and you cannot get away from it.

    Many of us remember similar times, how painful they are and how there`s no escape.

    It will be of no help for you to know how many of us had our plans for retirement scuppered. If I`ve learnt anything from this it is not to plan or look ahead too much or too far.

    It is early days for residential care for your husband and sad he is one of the younger people with dementia.

    Please accept the support which will be offered here. No one can take your pain away but sadly you are in good company.
     
  3. woodbrooklabs

    woodbrooklabs Registered User

    Aug 17, 2015
    45
    Hi Beannie, sorry to read about your sad situation. Its horrible seeing your loved ones inflicted with this horrible disease. I'm trying to get a diagnosis for my dad at the moment. His father suffered with AD also. Dads sister is showing signs of it now to. I am 40 and dread to think that myself and brother may up the same way. I just try to live each day at a time.:)
     
  4. patsy56

    patsy56 Registered User

    Jan 14, 2015
    840
    Fife Scotland
    I'm sorry Beanie, it is so hard, the plans you make that end in tatters
     

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