1. Warrior Mum

    Warrior Mum Registered User

    Jul 20, 2014
    39
    Cambridgeshire
    I don't know what to do. My hubby that was diagnosed with Vascular Dementia has been neurologically physcometric tested and the verdict is that he hasn't got dementia!!! I'm completely lost and pushing for GP to get a referral to Cambridge or London but as usual it is takinga long time.

    I'm completely drained and struggling to get through the day.

    Just want to scream and cry.

    WM XxxxX
     
  2. marionq

    marionq Registered User

    Apr 24, 2013
    5,853
    Female
    Scotland
    Who made the original diagnosis and who has made the new one?
     
  3. Chuggalug

    Chuggalug Registered User

    Mar 24, 2014
    8,007
    Norfolk
    Warrior Mum, it might be important to make a list of what you're seeing, day by day and use that list to grab the GP's attention. Since you, yourself can see that something's not right, you need properly trained people to make a medical assessment. Once you've got a correct diagnosis, then, steps can perhaps be made for the future, care- and otherwise.

    I know what it's like, living without a diagnosis and it ain't much fun, six years down the line. I truly hope you get a successful outcome.
     
  4. Warrior Mum

    Warrior Mum Registered User

    Jul 20, 2014
    39
    Cambridgeshire
    The Memory Clinic specialist made the diagnosis of Vascular Dementia, but the intial diagnosis from Neurology specialists was depression!!!! Since my hubby is only 34 and looses memories during sleep, I was able to get him referred onto the Memory clinic and they wanted further testing by the Sleep Clinic and Neurological Physcometric Testing. Seeing as his oxygen levels where ok but his heart rate slightly abnormal he then had a tape monitor (24hr EGC recorder) which showed nothing to cause concern. Physcometric Testing showed anxiety and depression which was explain as acceptable considering what he is going through but no dementia.

    This has been going on for 15 months now and we have an 8 yr old high spectrum autistic son and our 2.5 yr old is showing some autistic trates. It's getting more difficult to concentrate and stay focused. I feel extremely isolated, family don't really understand and feels like friends are falling by the wayside and make no real effort to stay in contact. I don't ask for help for either family or friends as I feel like a failure or weak, plus they have their own lives to deal with.
     
  5. Chuggalug

    Chuggalug Registered User

    Mar 24, 2014
    8,007
    Norfolk
    Far from being a failure WM; you're facing a daunting time. 34 is an extremely early age to have anything wrong such as you're describing. It's not unknown for someone so young to have some form of dementia, but there certainly needs to be someone in the field who knows what to test for, why they're testing, and what they're looking for.

    That doesn't come from experience, it's just plain old common sense.

    Hope someone can pop on to point you in the right direction, so you know what to ask for, and who to ask.

    I agree. Many people are left alone to cope. I'm sadly, only one of them. Hard work, that. Sending you a mammoth hug.
     
  6. chick1962

    chick1962 Registered User

    Apr 3, 2014
    11,280
    Female
    near Folkestone
    Oh bless plz don't give up my lovely. Your husband is very young so they will explore all avenues . My husband was 60 and it took them 18 month to give a full diagnosis. We went from this to that and back to this and I understand how hard it must be for you and your family . Best to discuss it all with your GP as he must have all the specialists reports and voice your views on the situation . Hopefully someone else will be along with more advice . Hugs to you x


    Sent from my iPhone using Talking Point
     
  7. Warrior Mum

    Warrior Mum Registered User

    Jul 20, 2014
    39
    Cambridgeshire
    Muchly appreciated XxxxX


    Many thanks and muchly appreciated XxxxX
     
  8. sinkhole

    sinkhole Registered User

    Jan 28, 2015
    269
    Asking for help is most definitely not a failing or weakness.

    These problems are not of your making, so there is nothing to be ashamed of in asking for some assistance to help deal with them.

    Keep pushing your GP and hang around here for a while as there are a lot of very capable people on this forum who will give you good advice and support.
     
  9. Warrior Mum

    Warrior Mum Registered User

    Jul 20, 2014
    39
    Cambridgeshire
    Thank you

    I can't give up and I won't let myself as all my boys (including hubby) depend in me. Thank you for the hugs XxxxX
     
  10. chick1962

    chick1962 Registered User

    Apr 3, 2014
    11,280
    Female
    near Folkestone
    Maybe a diary would be good to write down what your hubby struggles with and what affects it has so you can bring it to next appointment ? Xx


    Sent from my iPhone using Talking Point
     
  11. Warrior Mum

    Warrior Mum Registered User

    Jul 20, 2014
    39
    Cambridgeshire
    I have a journal, to write my thoughts in and a note of hus behaviour during the day, GP seems ok but not sure if she is pushing hard enough.
     
  12. chick1962

    chick1962 Registered User

    Apr 3, 2014
    11,280
    Female
    near Folkestone
    Has hubs had scans and spec scans? My John got diagnosed eventually with early onset of Alzheimer's but last year after more spec scans they found some vascular disease burden too although it's mild still. Xxx


    Sent from my iPhone using Talking Point
     
  13. min88cat

    min88cat Registered User

    Apr 6, 2010
    581
    Unfortunately it appears to be that those who shout the loudest get the most attention!

    You certainly have a huge amount on your plate. I would go back to the GP and explain that with 2 sons with problems, you are finding things hard to cope with, and unless she can understand where you are coming from, and get you the help that you need, she will have another patient on her hands!! Dramatic I know, but she needs to listen to you, and I mean really listen!

    Good luck, and don't fogprget to keep coming back here for anything you need. There is always someone around- you are not on your own.
     
  14. Warrior Mum

    Warrior Mum Registered User

    Jul 20, 2014
    39
    Cambridgeshire
    Thank you.

    As you can probably understand I rarely get time to get online and try to collect my thoughts. I am unsure whether I should come to Talking point for my hubby's condition. I also look out for my Mum who has Mixed type dementia (Vascular and Alzhiemers) and my dad who struggles with my Mum's condition.

    Thank you all for being here for me and a great "Sounding board" to get my thoughts in order.

    WM XxxxX
     
  15. Chuggalug

    Chuggalug Registered User

    Mar 24, 2014
    8,007
    Norfolk
    Most of us find it tough caring for one or two people. You've now mentioned four people. Blimey, Warrior Mum. Somebody needs to take you very seriously. Keep on fighting while you still have the courage. Your concerns need to be on somebody's radar.
     
  16. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    69,568
    Kent
    Hello Warrior Mum.

    You certainly chose your user name wisely, you have so much on your plate.

    Stay with us if you think it will help, whether your husband does have dementia or not. It will be very difficult to get a diagnosis for him at such a young age and the tests may be right.

    Even so, my husband was treated for depression for more than a year before he was diagnosed with Alzheimer's and he was 73.

    Do try to keep a diary. I understand how difficult it will be for you having such big family demands.
     

Share This Page

  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.
  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.