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Discussion in 'I have dementia' started by Jorbin, May 8, 2018.
did anyone else feel lost after been diagnosed?
Hello, Jorbin...I am absolutely certain you will not be alone in the way you feel. It must be a horrible shock. You will find that, as the day goes on, you will get more replies...and very likely some will be from fellow members who have a diagnosis of dementia.
The help line is open today, if you want to talk to somebody.
National Dementia Helpline
0300 222 11 22
Our helpline advisers are here for you.
Helpline opening hours:
Monday to Wednesday 9am – 8pm
Thursday and Friday 9am – 5pm
Saturday and Sunday 10am – 4pm
Hello Jorbin. You may be feeling what is called anticipatory grief and here is a link to an AS Factsheet about the matter (see page 4 in particular) https://www.alzheimers.org.uk/download/downloads/id/1796/factsheet_grief_loss_and_bereavement.pdf
When my wife was diagnosed we both suffered from it. I found that I worked through this phase quickly as I got busy organising things. However, I don't think my wife is through it yet.
It may help you to use whatever facilities are available in your area to get talking to people and here is a link to a page where you can use your post code to see what's available in your region http://alzheimers.org.uk/?_ga=2.267462092.330343123.1523487101-559654205.1505889693
Thank you for the fact sheet I have not read that one.
I can imagine how frightened you must be.
What is your life like currently?
Who supports you?
Sorry I am asking too many questions
I am not frightened. I have the support of the memory clinic and will be attending the In2minds course next months, and do to YODEL but still feel lost.
I can keen on photography and take photos for fundraising and would like to travel with others who understand.
Google Dementia Adventure for supported holidays. I hear they are very good. Enjoy.
Thanks I will have a look. I would like to visit Rome.
I’ve just had a quick look at their website & the holidays sound lovely! I didn’t even know this existed
I am looking forward to going to the In2minds group then I will know more about dementia.
I found frustrated that I am told of the groups I can join and activities to do but no one to one times with a person to talk about my emotions. When I was diagnosed with chronic fatigue I was invited to sessions one to one with a Mental Health CBT Specialist. Then invited to group sessions. These sessions have been invaluable to me but not invited to Alzheimer’s sessions?
Hi @Jorbin, it may be worth asking your GP for a referral to a CPN (Community Psychiatric Nurse). My wife got a referral and had a few useful 1 to 1 chats with the nurse. It took a while to get a first appointment though.
Thank you very much I will .
I am starting a six week course on Monday at The Meadows called In2minds and I will mention then.
I have emailed my Care Worker at The Meadows asking for a referral to see mt Mental Health Specialist.
She was fantastic in working with me with CBT for the CFS.