1. Q&A: Medication - Thurs 22nd November, 3-4pm

    Do you have questions about medication and drug treatments for dementia? There's no drug to cure dementia yet, but it's often possible to relieve some symptoms.

    Our next expert Q&A will be hosted by Simon from our Knowledge Services team. He will be answering your questions on Thursday 22nd November from 3-4pm.

    You can either post questions >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll answer as many as we can on the day.

Feeling lost

Discussion in 'I have dementia' started by Jorbin, May 8, 2018.

  1. Jorbin

    Jorbin Registered User

    Jan 30, 2018
    102
    did anyone else feel lost after been diagnosed?
     
  2. Amethyst59

    Amethyst59 Registered User

    Jul 3, 2017
    5,679
    Female
    Kent
    Hello, Jorbin...I am absolutely certain you will not be alone in the way you feel. It must be a horrible shock. You will find that, as the day goes on, you will get more replies...and very likely some will be from fellow members who have a diagnosis of dementia.
    The help line is open today, if you want to talk to somebody.
    National Dementia Helpline
    0300 222 11 22
    Our helpline advisers are here for you.

    Helpline opening hours:
    Monday to Wednesday 9am – 8pm
    Thursday and Friday 9am – 5pm
    Saturday and Sunday 10am – 4pm
     
  3. karaokePete

    karaokePete Volunteer Host

    Jul 23, 2017
    3,260
    Male
    Cyprus
    Hello Jorbin. You may be feeling what is called anticipatory grief and here is a link to an AS Factsheet about the matter (see page 4 in particular) https://www.alzheimers.org.uk/download/downloads/id/1796/factsheet_grief_loss_and_bereavement.pdf
    When my wife was diagnosed we both suffered from it. I found that I worked through this phase quickly as I got busy organising things. However, I don't think my wife is through it yet.

    It may help you to use whatever facilities are available in your area to get talking to people and here is a link to a page where you can use your post code to see what's available in your region http://alzheimers.org.uk/?_ga=2.267462092.330343123.1523487101-559654205.1505889693
     
  4. Jorbin

    Jorbin Registered User

    Jan 30, 2018
    102
    Thank you for the fact sheet I have not read that one.
     
  5. margherita

    margherita Registered User

    May 30, 2017
    2,229
    Female
    Italy, Milan and Acqui Terme
    Hi @Jorbin,
    I can imagine how frightened you must be.
    What is your life like currently?
    Who supports you?
    Sorry I am asking too many questions
     
  6. Jorbin

    Jorbin Registered User

    Jan 30, 2018
    102
    Hi

    I am not frightened. I have the support of the memory clinic and will be attending the In2minds course next months, and do to YODEL but still feel lost.

    I can keen on photography and take photos for fundraising and would like to travel with others who understand.

    Jacqui
     
  7. mumbasi

    mumbasi Registered User

    Sep 1, 2013
    106
    Google Dementia Adventure for supported holidays. I hear they are very good. Enjoy.
     
  8. Jorbin

    Jorbin Registered User

    Jan 30, 2018
    102
    Thanks I will have a look. I would like to visit Rome.
     
  9. PJ

    PJ Registered User

    Jan 26, 2017
    277
    Female
    Bristol
    I’ve just had a quick look at their website & the holidays sound lovely! I didn’t even know this existed:)
     
  10. Jorbin

    Jorbin Registered User

    Jan 30, 2018
    102
    Good.
     
  11. Jorbin

    Jorbin Registered User

    Jan 30, 2018
    102
    I am looking forward to going to the In2minds group then I will know more about dementia.
     
  12. Jorbin

    Jorbin Registered User

    Jan 30, 2018
    102
    I found frustrated that I am told of the groups I can join and activities to do but no one to one times with a person to talk about my emotions. When I was diagnosed with chronic fatigue I was invited to sessions one to one with a Mental Health CBT Specialist. Then invited to group sessions. These sessions have been invaluable to me but not invited to Alzheimer’s sessions?
     
  13. karaokePete

    karaokePete Volunteer Host

    Jul 23, 2017
    3,260
    Male
    Cyprus
    Hi @Jorbin, it may be worth asking your GP for a referral to a CPN (Community Psychiatric Nurse). My wife got a referral and had a few useful 1 to 1 chats with the nurse. It took a while to get a first appointment though.
     
  14. Jorbin

    Jorbin Registered User

    Jan 30, 2018
    102
    Thank you very much I will .
     
  15. Jorbin

    Jorbin Registered User

    Jan 30, 2018
    102
    I am starting a six week course on Monday at The Meadows called In2minds and I will mention then.
     
  16. Jorbin

    Jorbin Registered User

    Jan 30, 2018
    102
    I have emailed my Care Worker at The Meadows asking for a referral to see mt Mental Health Specialist.
    She was fantastic in working with me with CBT for the CFS.
     

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