I know that this is really a daily feeling but is a strong feeling today! Since my dads assessment the glaring issues in his care have become more and more obvious.
When I went in this afternoon I was inundated with staff, checking fluid and turn charts, giving a drink, turning him and having to clean his mess up. Quite right you may think but this is only the result of us going mad with their lack of care specifically over the last few days! I know that this amount of attention will not be sustainable and actually it makes you feel even more uneasy as you are waiting for it to stop!
He is still on end of life care which really seems to mean nothing to the staff apart from feeding him and giving him a drink every few hours. I told the care assistant that it was actually cruel to keep him in this state and it wasn't positive that they had managed to get him something today. On the one hand she told me she wouldn't want her family to allow her to live like this and then she tells me they can't play God and starve him. But to me actually they are playing God by making him eat and drink. How can one choice be in his best interests and one not? Strikes me that the fear of us being sued outweighs any quality of life.
If I had more energy then I am telling you I would see legal advice about human rights. But I don't so I won't instead I will put my frustrations here!!!
I walk into his room, he may or may not open his eyes, he can't respond to you, he doesn't recognise you. He can't tell you if he is hot or cold, if he has messed or not, if he is hungry or thirsty or not, he can't turn himself, his leg is so bent he can't straighten it, what pleasure is there and what quality of life is this for anyone???
Aghhhhhhhh
Heather!!!
When I went in this afternoon I was inundated with staff, checking fluid and turn charts, giving a drink, turning him and having to clean his mess up. Quite right you may think but this is only the result of us going mad with their lack of care specifically over the last few days! I know that this amount of attention will not be sustainable and actually it makes you feel even more uneasy as you are waiting for it to stop!
He is still on end of life care which really seems to mean nothing to the staff apart from feeding him and giving him a drink every few hours. I told the care assistant that it was actually cruel to keep him in this state and it wasn't positive that they had managed to get him something today. On the one hand she told me she wouldn't want her family to allow her to live like this and then she tells me they can't play God and starve him. But to me actually they are playing God by making him eat and drink. How can one choice be in his best interests and one not? Strikes me that the fear of us being sued outweighs any quality of life.
If I had more energy then I am telling you I would see legal advice about human rights. But I don't so I won't instead I will put my frustrations here!!!
I walk into his room, he may or may not open his eyes, he can't respond to you, he doesn't recognise you. He can't tell you if he is hot or cold, if he has messed or not, if he is hungry or thirsty or not, he can't turn himself, his leg is so bent he can't straighten it, what pleasure is there and what quality of life is this for anyone???
Aghhhhhhhh
Heather!!!
