My Husband has been diagnosed with Parkinson's Dementia. I have been looking at the forum for a while and now is the time to log in.
As it is 2 am I guess you are unable to sleep and feeling stressed. Do you have any help with him? Personal care in the mornings or a befriended to sit with him while you get a short break? Are you getting Attendance Allowance which helps to pay for care. Would he go to a day centre?
Tell us a bit more about the issues you are dealing with.
Hi marionq, the dAs it is 2 am I guess you are unable to sleep and feeling stressed. Do you have any help with him? Personal care in the mornings or a befriended to sit with him while you get a short break? Are you getting Attendance Allowance which helps to pay for care. Would he go to a day centre?
Tell us a bit more about the issues you are dealing with.
Hi marionq. Thank you for replying. I phoned the Parkinson's helpline and someone is phoning on Friday. All we have is POA , finance, it's very much a learning curve. My husband is mobile but even though it is mild dementia it has an impact. I try to go online if he is in the shower etc as he is upset by it all.As it is 2 am I guess you are unable to sleep and feeling stressed. Do you have any help with him? Personal care in the mornings or a befriended to sit with him while you get a short break? Are you getting Attendance Allowance which helps to pay for care. Would he go to a day centre?
Tell us a bit more about the issues you are dealing with.
Thank you all for the advice and support, I don't feel so lost now, I know that I can come on here and say how I really feel. I will look at the links and keep track of things. xHello @Little moth, hope you have a chance to look at the links above and gain as much information as possible. There will always be someone here to try and help you as much as they can. Wishing you luck on this journey x