I am totally exhausted. T needs me every second of every day. I can only take care of him and this takes up the whole day. I keep kitchen and bathroom clean and that is all I can do. Does anyone else have this problem. I don't have carers coming in as it is too expensive.
I would love to hear from other carers please.
Aisling ( Ireland)
Hi and welcome to TP. Unfortunately, this is often the case with Alzheimer's, whether or not he has a UTI. But in order to get everything you should, be prepared to nag Social Services, and all other professionals, and keep phoning.
I know this is a Big Ask, when you are dropping on your knees from exhaustion, but the only way I got myself listened to, was when I burst into tears on the phone, plaintively wailing "I can't cope! I can't carry on any longer!"
This wasn't a put-on act, as every time I spoke about my difficulties with John, I had "cry" in my throat, but I tried to be stoic, and stifle it. Which was stupid and got me nowhere. Once I did my Oscar winning performance, I found that my audience reacted.
As fizzie said, don't accept the quota that you're first offered, keep crying, be like Oliver Twist and ask for more, and you'll get more help. Good Luck xxx