I’ve just looked back ro see my first post was just over 6 years ago when my husband was quite newly diagnosed with Alzheimer’s. He deteriorated very slowly and I frequently posted about he frustration of living with an annoying overgrown toddler who could only get more not less dependent. I often wished it would end. Then in October he had a stroke. I posted here about how unfair it was on him having spent 6 years slowly losing all his cognitive ability to suddenly lose everything else including speech and swallowing.
After a month the rehab team discussed with me the reality if his situation and the decision to offer him palliative care and transfer to a nursing home which I accepted. He was moved to a home about 20 minutes from here. He was very unhappy, restless and distressed and I discussed with the home’s GP the possibility of sedation to make him less unhappy and they agreed. He died a few days later and fortunately I was able to be with him
So my life as a carer - both for him and my father who died three years ago, is over. It feels very strange and very sad but my husband is at peace. He will not suffer either the indignity of his gradual decline with dementia or the frustration of being paralysed by the stroke. My sons commented that I look as if a load has been lifted from my shoulders and I think they struggle to understand why I am not a sobbing wreck. I lost my beloved husband and soul mate several years ago and I have shed plenty of tears over the years and lots more over the last few weeks and sitting by his bed as he died. I have done a lot of grieving already
TP has been a huge support and I will always remember the care and support given to me and everyone else who posts in distress and despair. Keep up the good work and caring for each other on your different journeys with this evil evil disease,
THANK YOU xxx ?
After a month the rehab team discussed with me the reality if his situation and the decision to offer him palliative care and transfer to a nursing home which I accepted. He was moved to a home about 20 minutes from here. He was very unhappy, restless and distressed and I discussed with the home’s GP the possibility of sedation to make him less unhappy and they agreed. He died a few days later and fortunately I was able to be with him
So my life as a carer - both for him and my father who died three years ago, is over. It feels very strange and very sad but my husband is at peace. He will not suffer either the indignity of his gradual decline with dementia or the frustration of being paralysed by the stroke. My sons commented that I look as if a load has been lifted from my shoulders and I think they struggle to understand why I am not a sobbing wreck. I lost my beloved husband and soul mate several years ago and I have shed plenty of tears over the years and lots more over the last few weeks and sitting by his bed as he died. I have done a lot of grieving already
TP has been a huge support and I will always remember the care and support given to me and everyone else who posts in distress and despair. Keep up the good work and caring for each other on your different journeys with this evil evil disease,
THANK YOU xxx ?