Everyone should make their end of life care known whether they have AZ or not, all the decisions about what they want to happen to them if the worse did happen.
My dad died very suddenly from a heart attack and my mother's biggest concern was what he would have wanted, they'd never discussed it so every decision was "what would your dad have wanted? Cremated or buried, would he give his organs for transplant, although he had no faith would it be OK if mum went for her preferred option of a Christian funeral?
The questions were endless so some years later when my mum had to have a major operation she sat my brother and I down and told us what she wanted to happen if it did go wrong, she didn't want to be resuscitated if it meant she may be brain damaged, if she did die then they "can take anything they want if it's useful to someone else" so organ donation was what she wanted, I think the idea that her living on as someone else's heart, liver or kidneys mad her think she'd be living on too in a strange way.
I've done the same with my kids, they know what I want should something happen be it AZ or I get knocked over by the 29 bus, they know where the deeds for the house, my will and all the other things are, they know I want to be cremated and where I want my ashes spread.
Some parts of the question like DNR are things that need to be the NHS need to be aware of but most of what you want to happen to you is personal so it's a family matter as the family are the ones that will most likely have to deal with the situation at the end.
The longest I can remember on here still posting was a man 16 years after diagnosis, he came on and posted some really interesting things not least his recipes until he passed away from another cause, many people in the post diagnosed section on here were diagnosed years ago but they can still come on here and post some inspirational stuff and are living life to the full.
I wish I'd had quite a few discussions with my wife but by the time she was diagnosed (about 55) she went into total denial in a very aggressive manner, now I have to make all the decisions and have to guess what she'd want or what I'd want if the positions were reversed.
I'd tell her that if someone else came along then go for it, I don't feel that as she never said that I can give permission to myself to do that, lots of little issues that I'd have liked to know what she wanted if they happened but it's too late now to ask.
I go and see her everyday because I know she'd never have left me alone and when I'm asked for my input on medical decisions and her physical caring needs I just have to guess what she'd say if it was me in the home.
Everyone should make their future wishes known otherwise it's a bit like not writing a will, no one knows what you actually wanted to happen, so tell them, now.
K