Hello,
Whilst having been a member for some time I haven't posted before. I am an only child (but do have supportive family and partner) and both parents have dementia Dad has vascular dementia and is near end of life and Mother has Alzheimer’s. I have made a conscious choice based on their wishes and comfort to keep both of them at home. I employ two people to supplement the personal care from the local authority and have the right equipment in place and support from Psychiatrist and CPN.
Whilst my Dad has been taken off most of his meds except those that keep him calm The biggest problem I have is that my poor Mum does not remember he is ill and thinks he is being lazy and tries to pull him out of bed, (she cant because of the safety bars) shouts at him or tells him off for being "lazy". This obviously is upsetting for him ...although he is often asleep, for carers and me.
I take her up with me to sit with him and explain he may not have long and we should spend some with him. She is OK but then forgets ... over the last couple of days she has been more aggressive and less caring towards him. I had wondered whether in her eyes, all the attention is for him ...Jealousy? or the fact he was quite aggressive and violent as his disease progressed and that she basically has no time for him anymore...dying or not. Just wondered if anyone had encountered similar and any tips or strategies that could help him in his last days. They have been 55 years married and I had to buy a hospital bed and ask her to move to the spare room and she is a bit resentful about that too as we have home hospital etc.
Whilst having been a member for some time I haven't posted before. I am an only child (but do have supportive family and partner) and both parents have dementia Dad has vascular dementia and is near end of life and Mother has Alzheimer’s. I have made a conscious choice based on their wishes and comfort to keep both of them at home. I employ two people to supplement the personal care from the local authority and have the right equipment in place and support from Psychiatrist and CPN.
Whilst my Dad has been taken off most of his meds except those that keep him calm The biggest problem I have is that my poor Mum does not remember he is ill and thinks he is being lazy and tries to pull him out of bed, (she cant because of the safety bars) shouts at him or tells him off for being "lazy". This obviously is upsetting for him ...although he is often asleep, for carers and me.
I take her up with me to sit with him and explain he may not have long and we should spend some with him. She is OK but then forgets ... over the last couple of days she has been more aggressive and less caring towards him. I had wondered whether in her eyes, all the attention is for him ...Jealousy? or the fact he was quite aggressive and violent as his disease progressed and that she basically has no time for him anymore...dying or not. Just wondered if anyone had encountered similar and any tips or strategies that could help him in his last days. They have been 55 years married and I had to buy a hospital bed and ask her to move to the spare room and she is a bit resentful about that too as we have home hospital etc.