Hi
Feeling a little sad as after discussion with staff at Mum's Nursing Home the time has come for us to discuss End of Life Care for her.
She has gone rapidly down hill since the end of last summer and since Christmas has been bed ridden with TIAs at the rate of about 2 a week from which she has been rousing with some difficulty. She requires assistance with everything, rarely recognises anyone and is constantly talking to her "Angels", her invisible friends. She notices little going on about her and her quality of life has vanished.
My brother and I have discussed her care at length together and with the home staff and I have a telephone consultation with her GP tomorrow. Our main aim is to ensure that she has no pain, her dignity is preserved, she is not hospitalised and that she has a DNR put on her notes. She mainly manages her food and hates "Mush" so I am also asking that she has a normal date as long as possible as I would rather she dies living than lives dying. I know she would refuse "mush" so would rather risk aspiration pneumonia so she can eat what she enjoys. I feel so cold asking for these things eventhough I know it is what she would want and am dreading the phone call tomorrow.
Just feel so strange eventhough I know that it has been coming and although all has been discussed over time and informally it seems like a huge hurdle to get it onto her medical notes.
I am crying again inside for such a sorry end.
Mameeskye
Feeling a little sad as after discussion with staff at Mum's Nursing Home the time has come for us to discuss End of Life Care for her.
She has gone rapidly down hill since the end of last summer and since Christmas has been bed ridden with TIAs at the rate of about 2 a week from which she has been rousing with some difficulty. She requires assistance with everything, rarely recognises anyone and is constantly talking to her "Angels", her invisible friends. She notices little going on about her and her quality of life has vanished.
My brother and I have discussed her care at length together and with the home staff and I have a telephone consultation with her GP tomorrow. Our main aim is to ensure that she has no pain, her dignity is preserved, she is not hospitalised and that she has a DNR put on her notes. She mainly manages her food and hates "Mush" so I am also asking that she has a normal date as long as possible as I would rather she dies living than lives dying. I know she would refuse "mush" so would rather risk aspiration pneumonia so she can eat what she enjoys. I feel so cold asking for these things eventhough I know it is what she would want and am dreading the phone call tomorrow.
Just feel so strange eventhough I know that it has been coming and although all has been discussed over time and informally it seems like a huge hurdle to get it onto her medical notes.
I am crying again inside for such a sorry end.
Mameeskye