Hi there,
My mother has had Alzheimer's disease for at least 6 years if not longer. She has been in an EMI care until since June 2016 when she became unable to look after herself and also immobile, She has deteriorated gradually but still able to speak in short sentences or words in context until recently. She was very pleasant, undemanding and appeared content,
She has not been eating or drinking enough for the past 5 or 6 weeks bur remained alert up until about 2 weeks ago when she deteriorated to the extent that she was sleeping all the time and refusing to eat or drink. She is now confined to bed , asleep or appears to be and perhaps eating a yoghurt or 2 but nothing else, She has lost a lot of weight. The change in her appears dramatic. However, she is comfortable and peaceful with no sign of pain or ditstress.Yesterday (Sunday)the out of hours GP was called to check her out and authorise an end of life care plan should she deteriorate further.Her physical checks were all ok. I have decided that she should be nursed in the care home rather than be admitted to hospital.
MY QUESTION IS ...has any one else been in my situation? How much information were you given? I know its a really difficult question but should I prepare myself for her imminent demise?
I have no idea what to do regarding spending time with her. If she only has a few days I would take some time off work. I want to spend her last days with her. I dont know how I will concentrate in work if I have no idea how much time I can spend with her in her final days and when to start taking time off.I would be devastated if I made the wrong choice.
My mother has had Alzheimer's disease for at least 6 years if not longer. She has been in an EMI care until since June 2016 when she became unable to look after herself and also immobile, She has deteriorated gradually but still able to speak in short sentences or words in context until recently. She was very pleasant, undemanding and appeared content,
She has not been eating or drinking enough for the past 5 or 6 weeks bur remained alert up until about 2 weeks ago when she deteriorated to the extent that she was sleeping all the time and refusing to eat or drink. She is now confined to bed , asleep or appears to be and perhaps eating a yoghurt or 2 but nothing else, She has lost a lot of weight. The change in her appears dramatic. However, she is comfortable and peaceful with no sign of pain or ditstress.Yesterday (Sunday)the out of hours GP was called to check her out and authorise an end of life care plan should she deteriorate further.Her physical checks were all ok. I have decided that she should be nursed in the care home rather than be admitted to hospital.
MY QUESTION IS ...has any one else been in my situation? How much information were you given? I know its a really difficult question but should I prepare myself for her imminent demise?
I have no idea what to do regarding spending time with her. If she only has a few days I would take some time off work. I want to spend her last days with her. I dont know how I will concentrate in work if I have no idea how much time I can spend with her in her final days and when to start taking time off.I would be devastated if I made the wrong choice.