Early Onset Dementia poses particular issues for the families of those with the condition. Unlike classic dementias where both patient and a husband or wife may be [sometimes way] beyond retirement age, the partner of someone with Early Onset Dementia may still need to be in work each day, or they may have young family to bring up. For those who are younger, the pain of watching someone who should be in their prime enter a tunnel of unknown duration - and unknown deterioration - can be catastrophic. All plans for a future beyond work are trashed, and you still have to try to keep going, in the later stages with someone who cannot recognise you. I found little understanding either in the medical community or among my friends and family of the situation of Early Onset families - indeed, of the fact of Early Onset Dementia at all, at first, ['Why visit every day? Pull yourself together and make a new life' is hardly helpful], and I know of others in the same boat. What experiences have other people had?