Hello, this is my first post. I have been caring for my sister who has Downs syndrome for the past twenty years. She is 47. Up until a few years ago she worked every day and had a busy social life. If I would have known that 25% of Downs develop Alzheimers I would have looked for the symptoms, but I thought, when she started to slip it was all part of downs. A year ago she was put on a drug called Aricept and she began to remember things she had forgotten. This past summer she started to have seizures and the doc put her on a drug called Tegretol. It controlled the seizures but she lost so much. Today she is wheelchair bound, incontinent and must be fed and dressed, total care. If it were not for Ontario Disability Support Program, she would have to be institutionalized. It's a rough go but she is content to be at home and it was a promise I made to my mom. Looking forward to some discussion on any information available. It's so hard to get straight answers from the Doctors. Thanks