Dear
@DesperateofDevon,
Generally dad received good care unlike (my grandmother who may not have had dementia but was left with some individuals not always knowing what to do with her) but it was an uphill struggle trying to get him to the doctors before diagnosis. I often see people encouraging others to the write to their GP on this forum but when I did that I got no reply and yet they have a special post box for patients! Dad was putting things in odd places at this point but when he started to see people that weren't there I contacted them again and we had to use his other conditions to get him to the doctors.
There was also the case of the missing blood test and when he complained about his foot he was seen by a nurse and not a doctor because some surgeries were giving more duties for the nurse. By the time he was seen by a doctor about his feet his blood pressure was starting to plummet and he had several falls.
When his Alzheimers became so severe that he had to go back into the care home permanently we were seen by a social worker who said that I would have to pay a top-up eventhough dad was self-funding. My brothers and I knew more about the system than she did!
I just remember the sleepless nights worrying about what was to come and how I was going to fit in the caring and pay for it. I worrying constantly about dad so I take my hat off to everyone here who is still going through it.
MaNaAk
Bless you , well today I updated the placement waiting to hear about funding from the hospital … 10 days & counting !
I emailed PALS & phoned them saying I contacted you last week & can you help please? I was then given a different email address & contact details & basically am losing the will to live … but perhaps that’s the idea?
the list of issues at the hospital just keeps growing … I don t think they can help themselves.
daughter today booked appointment to see her Granny - well it’s only taken 10 days!
Then received email to say that Ward Manager would be discussing issues & future care plan with the Granddaughter….. umm actually we are LPoA ‘s & we are still waiting for an explanation of why 3 consultants say Mums at End of Life & a ward nurse & manager say she’s not ?
why the placement are waiting to hear from the hospital to confirm funding 10 days & counting? Why Mum is being given meds when she’s got a DNR & doesn’t want intervention? Why they moved mum not once but 3 times to different wards & to a different hospital without informing us ? Why they stopped pain meds & didn’t tell us? Why the CHC has never received the fast track CHC & yet we are told Mums been refused?
Yep I can see why all of a sudden that talking to a young granddaughter is preferable to talking to 2 LPoA’s !!
seriously … I’m either crying or a wreck ! It would be easier to just say ok … but Mum could be placed in a care home & she needs nursing palliative care - the home they placed Dad in wouldn’t get the morphine & driver sorted & the district nurse wouldn’t come out to fit it at 7.15 pm as she could be heard over the phone saying oh he’s still going to be there in the morning . Dad was dead by 9.15pm.
the arrogance of some professionals is shocking & sadly we are struggling again because of that!
well CQC now has the facts
PALs has the facts
Do I think it will make a difference - no!
The system is being privatised & there are more managerial roles than nursing staff .