Hi..I am new to the forum. I have been reading alot of the posts and was amazed to read so many similar stories. My dad passed away in August from Lewy Body Dementia. Its been 4 months and I still find it difficult. Dad was diagnosed about 3 years ago, he was slowly going down hill over that time, my mum was his full time carer but in May he was admitted into hospital cos he was falling. The day before he went into hospital he was eating, drinking and mobile (sort of) and able to communicate somewhat. The day after he went into hospital he went rapidly downhill, he was somewhat aggressive, confused, he was sedated most of the time, didn't know anyone and eventually (within a few weeks) stopped eating and drinking, he was on a drip till his last breath. He didn't talk, didnt know me really, the odd time I would see a little flicker of recognition and in the blink of an eye it was gone. I was heartbreaking to see him like this and what I find most difficult to come to terms with is wondering if he knew I was there with him, did he know me at all, did he feel like he was abandoned, was he in pain, so many questions and I will never know the answers to them, I feel a sense of guilt for leaving him in hospital. If we had taken him home, would his familiar surroundings have brought him back. I do sometimes feel that it was the sudden change to his routine that made him deteriorate, jump started the alzheimers. anyway sorry for rambling, so what did I do, I did what I do best, I wrote a song about it. It is how I get my feelings out. I cant attach it or give you the link but if you go to soundcloud.com and search my profile name Milly Gil you can find it.
I hope you have a listen and can connect to it...it is country, so if country is not your thing, you may not like it, but the sentiments are the same...
Milly
I hope you have a listen and can connect to it...it is country, so if country is not your thing, you may not like it, but the sentiments are the same...
Milly