1. Expert Q&A: Benefits - Weds 23 October, 3-4pm

    Our next expert Q&A will be on the topic of benefits. It will be hosted by Lauren from our Knowledge Services team. She'll be answering your questions on Wednesday 23 October between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

  1. chick1962

    chick1962 Registered User

    Apr 3, 2014
    11,280
    Female
    near Folkestone
    Seems after speaking with admiral nurse I got my hopes up way to much! She spoke with SS about my OH getting up 3 to 5 times a night and myself getting real tired. Apparently with cuts in care and funding I can't have any help ! SS are coming out on 19th to do an annual review but to be honest I can't be bothered as there seems no point! Decided to take a bit of a break from TP . Take care all of you xxx


    Sent from my iPhone using Talking Point
     
  2. Izzy

    Izzy Volunteer Moderator

    Aug 31, 2003
    59,590
    Female
    Dundee
    I'm sorry to hear that chick. We'll miss you but look forward to seeing you back when you're ready.

    Take care. x
     
  3. Isobel19660

    Isobel19660 Registered User

    Feb 5, 2015
    17
    What a battle we seem to have all the time with authorities. I am new here and having read through a lot the last couple of days I am astonished and disappointed with what some poor folk seem to have to go through to get help with a loved one.

    Do these authorities not see that if primary carer at home is not in good health or getting sufficient rest themselves then the dementia patient will be pit at risk.

    Take care
     
  4. marionq

    marionq Registered User

    Apr 24, 2013
    5,853
    Female
    Scotland
    Please speak yo your GP or Memory clinic consultant about medication. I had this problem. - it is unbearable losing sleep to this extent. On Zopiclone and Trazodone for John I get a decent six or seven hours. The consultant said if this stops working she will look at something else.
     
  5. sleepless

    sleepless Registered User

    Feb 19, 2010
    3,232
    Female
    The Sweet North
    Marionq makes a good suggestion, chick. Do try this route.
    I don't recall reading of anyone receiving help from carers through the night, but several people have been helped by medication for their loved one.
     
  6. Grey Lad

    Grey Lad Registered User

    Sep 12, 2014
    5,737
    North East Lincs
    Have P M you. Hope you get the support you need and deserve. G L
     
  7. Beate

    Beate Registered User

    May 21, 2014
    11,713
    Female
    London
    Don't get disheartened or leave TP please, Heike! We all have setbacks but we need to battle through them. As others said, get the GP involved. If you haven't got a respite allocation yet, now is the time to apply for it.
     
  8. truth24

    truth24 Registered User

    Oct 13, 2013
    5,726
    North Somerset
    We'll miss you, chick. Please come back soon.

    Sent from my GT-N5110
     
  9. 2jays

    2jays Registered User

    Jun 4, 2010
    11,604
    West Midlands
    We will always be here for you. xxx


    Sent from my iPhone using Talking Point
     
  10. Spamar

    Spamar Registered User

    Oct 5, 2013
    6,972
    Suffolk
    Chick, pleased reconsider and come back we will do our best for you. These things are sent to try us, but I'm sure there is a way out somehow.
    S
     
  11. pamann

    pamann Registered User

    Oct 28, 2013
    2,635
    Kent
    Hello chick do come back soon we will miss you, get some sleeping pills for hubby, it will make him sleep, you will feel so much better, ♡♡♡
     
  12. lin1

    lin1 Registered User

    Jan 14, 2010
    9,322
    Female
    East Kent
    I am so sorry Chick.
    It is hard enough without all the fighting , pushing and disappointments .
    No one should have to reach crisis point to get a crumb of help.

    My Admiral nurse didnt win my last fight to get a specialist hoist for mum . That too was because of cost.
    It is horrible having your hopes dashed so.

    I wish I could give you more than this cyber
    ((((((HUG)))))).
     
  13. esmeralda

    esmeralda Registered User

    Nov 27, 2014
    3,072
    Devon
    Oh Heike Chick you sound really down. I do hope you get effective help from somewhere.....
    Take care of yourself lovely girl, will miss you. Hope you come back soon. Much love Es
    xxxxxxxxxxxxxxxxx
     
  14. Lilac Blossom

    Lilac Blossom Registered User

    Oct 6, 2014
    520
    Scotland
    Dear Chick

    It really knocks us back when, having our hopes built up a wee bit, we end up disappointed and let down again. Hope you will come back to TP soon. xx
     
  15. Chuggalug

    Chuggalug Registered User

    Mar 24, 2014
    8,007
    Norfolk
    Oh Chick. That sounds desperate, and yet, I understand as I've just come out of a bout of real depression. I hope you know you can contact me any time for a shoulder to lean on.

    I've done that a few times: believed people when they promised almost the earth to us, and then left us abandoned. I know what it's like, love.

    Don't leave. Come and talk. I know it's wearisome to put it all on here. But I care. Never forget that. I care. xx
     
  16. truth24

    truth24 Registered User

    Oct 13, 2013
    5,726
    North Somerset
    Me too, sweetie.

    Sent from my GT-N5110
     
  17. LYN T

    LYN T Registered User

    Aug 30, 2012
    6,968
    Brixham Devon
    I will miss you. Perhaps you will return in the near future-I really hope you do

    Love and extra special hugs sent to you

    Lyn T XX
     
  18. Scarlett123

    Scarlett123 Registered User

    Apr 30, 2013
    3,802
    Essex
    I'll miss you too. :( Please feel free to PM, if you ever want to. xxx
     
  19. chick1962

    chick1962 Registered User

    Apr 3, 2014
    11,280
    Female
    near Folkestone
    Hiya all thank you for the lovely wishes! Means so much. Been drawing up my battle plans, looking at the care act and various other material and been reading lots of posts on here to get the "knowledge"!! Got mental health appointment today with John . Can't say I am looking forward to it. SS on the 19th but don't think other than offering sleeping meds will be on the agenda. John can't take these due to his medications. I guess I just miss my work, my friends , financial independence and some form of normality and most of all I miss my John. However despite all this I can cope somehow ! It just gets to me when you read about ppls struggle on here and it makes me angry that so little support from the services is available . Dignity and morality does not extend to dementia when it comes to the services . How come every illness is covered by the NHS and dementia isent???? We all should not have to struggle like this . Sorry for the long post . Love to you all Heike xxx


    Sent from my iPhone using Talking Point
     
  20. Izzy

    Izzy Volunteer Moderator

    Aug 31, 2003
    59,590
    Female
    Dundee
    Good morning Heike.

    Glad to see you here, Wishing you well for all that's in front of you this week. xx
     

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