Disabled with a partner who’s just been diagnosed with early onset dementia

Discussion in 'I have a partner with dementia' started by Rencat, Jun 19, 2019.

  1. Rencat

    Rencat New member

    Nov 15, 2018
    6
    I’m disabled having had a stroke affecting my left side and I’m also a right leg amputee so I’m confined to a wheelchair and have been for ten years, my partner of twenty years who is my carer has been diagnosed with early onset dementia at 55, I’m 52. I’m now struggling and have been diagnosed with depression and anxiety, I went to the doctor and he referred me to talking therapy, I haven’t heard back from them so rang up to Be told there’s a waiting list of between 8 to twelve months to be seen. I can’t wait that long and was wondering if there’s any help and one to one support offered by the Alzheimer’s society. I’m at the end of my tether and don’t know whichever way to turn
     
  2. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    68,900
    Kent
    I think you need more than Talking Therapy @Rencat. What bad news for both of you.

    Please phone our Helpline to see if they can offer any better advice.

    National Dementia Helpline

    0300 222 11 22

    Our helpline advisers are here for you.

    Helpline opening hours:

    Monday to Wednesday 9am – 8pm

    Thursday and Friday 9am – 5pm

    Saturday and Sunday 10am – 4pm
     
  3. Shedrech

    Shedrech Volunteer Moderator

    Dec 15, 2012
    7,564
    Yorkshire
    hello @Rencat

    what a tough situation for the both of you

    I'm guessing that you are aware of care needs assessments by your Local Authority Adult Services ... do contact them and make them aware of your joint situation

    Admiral Nurses are there to help the carer of a person diagnosed with dementia .. even if there isn't a nurse local to you, they too have a helpline and may well be able to make suggestions and direct you to local resources
    https://www.dementiauk.org/get-support/admiral-nursing/

    I wonder whether the Stroke Association may have some advice for your particular situation
    https://www.stroke.org.uk

    and there's
    https://www.youngdementiauk.org/find-support

    sorry to bombard you with links but not to be of direct help
    do keep posting as it does help to share experiences
     

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