Hi Denise. I am sorry I know so little of cerebral palsy other than limited contact with children I have worked with - and I am still in 'shock' at my mother's diagnosis, so I am probabaly very little help just now, other than to say I have found this site to be such a huge source of support as I am sure it will be to you.
What I have not disclosed so far on this site (as it didn't seem relevant but may be to you) is that I suffered GBS (Guillan Barre Syndrome) about five years ago. I was a 'lucky one' - paralysed (only) from waist down for about three weeks, and more or less 'mobile' again after six months.
I have been able to return to driving, to work part-time (now office based) since then and continue caring for my own little family as well as 'mum'.
Right now, the legacy has returned. Where I could 'pace myself' over the last few years (simple things like don't do the ironing and the shopping on the same day) I am now forced into a 'caring role' where I seem to have no choice about the physical demands placed on me... until I collapse in a heap with my feet propped on a bean bag until I get some feeling back in my legs....
I appreciate this is probably a 'nothing' compared to where you are at just now. If you care to share, I care to care,
Love, Tender Face