Diagnosed with Frontal lobe dementia

Discussion in 'I have a partner with dementia' started by Janey B, Sep 27, 2019.

  1. nae sporran

    nae sporran Volunteer Host

    Oct 29, 2014
    6,221
    Male
    Bristol
    Welcome to DTP, @Hubby1. Sorry I have no experience of FTD myself, but remember how hard it was in the early days after my partner was diagnosed with Vascular Dementia. You will find support and help here from others who will have similar experiences, and you can start your own thread if you want to ask more specific questions.
     
  2. MAMMYGRANNY

    MAMMYGRANNY Registered User

    Jan 26, 2016
    61
    Hi Hubby1,
    I'm very sorry that your wife has been diagnosed at such an early age with FTD.
    You are absolutely right to live life to the full for as long as your wife is able to!

    No one can predict how long your wife will live or how her illness will progress as it varies so much.
    My husband was diagnosed six years ago but in retrospect he had some symptoms for quite a few years by then.

    When he was diagnosed I read those devastating statistics ( 6 to 8 years ) and was in a terrible state. But remember this is the average lifespan so some people live twenty years or more while others survive for a much shorter period.

    My advice to you would be to get your legal stuff like wills power of attorney etc seen to as soon as possible while your wife still has capacity and if possible find out her wishes now regarding her health care for when she can no longer make those decisions herself.
    If you need to find info on FTD just google AFTD. Its American but has good information as to what to expect. Also there is an online support group FTD support forum which has a lot of useful support and advice from people caring for a family member with FTD.
    Some people with FTD make very poor financial decisions and can be easily taken in by scams so it might be a good idea to protect your assets if you can.

    Of course you are so very upset by this diagnosis - it is dreadful and my heart goes out to you but just take it one day at a time - some will be good some not but I feel sure you will do your very best to care for your wife. If I can help you in any way please don't hesitate to ask.
     
  3. PJ

    PJ Registered User

    Jan 26, 2017
    343
    Female
    Bristol
    Hi sorry for the late reply but I’ve just come across your post. I was diagnosed with bvFTD 18 moths ago (ish) & I, like your wife am very active. I am aware of how much my behaviour has changed, I’m far more outgoing & like to talk to people (complete strangers). I was 53 last week & I do feel thankful that I’m doing so well. Although my husband sometimes finds my behaviour a little challenging, in a fun way atm. I hope you and your wife are still doing well & living life to the full :)
     

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