Why is life so cruel, I feel i am really losing my Susie,her mind has deteriated so much over the last month,it scares me what the next step will be like,she has dreadfull attacks which mixes her mind so dreadfully she does'nt know what is happening,trying to calm her is so hard,she has a medication to assist her, the problem with this is the body can become tolerant to the drug then it does'not work as efficiently,her specialist doctor is wonderfull, he vists every week,and try's so hard to reassure her, Susie gets very agitated if we are at home for to long, taking her out for little trips seem to help for a short period. Has anyone experienced similar changes and how ddo you deal with the situation
Despair for susie
- Thread starter pete kelly
- Start date
Hello:
I am sorry you have had to post such sadness about Susie's deterioration. Its hard to advise about how to cope; there is a regular phrase on TP 'day by day' and that is what we have to do.
You say you have an excellent specialist. Please do not hesitate to discuss your fears with him because you matter too. Some of us keep diaries of daily incidents which can be useful when recalling the deterioration in our loved one.
Many of us have found the support and advice here on TP has been invaluable. Please air your feelings and you will surely find others have had similar experiences.
Best wishes
I am sorry you have had to post such sadness about Susie's deterioration. Its hard to advise about how to cope; there is a regular phrase on TP 'day by day' and that is what we have to do.
You say you have an excellent specialist. Please do not hesitate to discuss your fears with him because you matter too. Some of us keep diaries of daily incidents which can be useful when recalling the deterioration in our loved one.
Many of us have found the support and advice here on TP has been invaluable. Please air your feelings and you will surely find others have had similar experiences.
Best wishes
Dear Pete, I agree that life can be so very cruel sometimes.
Unfortunately Lionel is now so much further into this illness, and I cannot really remember just how we coped through those times, but we did somehow.
Just wanted to let you know I am thinking of you, and acknowledging your sad post. Stay strong.
Unfortunately Lionel is now so much further into this illness, and I cannot really remember just how we coped through those times, but we did somehow.
Just wanted to let you know I am thinking of you, and acknowledging your sad post. Stay strong.
Hello
Im the same as Connie.
what I've found is
I alway's fear the next phase of this awful disease.
that I won't be able 2 cope and mum will suffer because of it.
speak to the consultant bout your worries and fears
Also ask if their is an Admiral Nurse in your area, if so your in luck!
They are specialist dementia nurses, are there for you the carer
my one was a mind of up 2 date info, have me idea's that i hadn't thought of
and most importantly LISTENED to me
Im the same as Connie.
what I've found is
I alway's fear the next phase of this awful disease.
that I won't be able 2 cope and mum will suffer because of it.
speak to the consultant bout your worries and fears
Also ask if their is an Admiral Nurse in your area, if so your in luck!
They are specialist dementia nurses, are there for you the carer
my one was a mind of up 2 date info, have me idea's that i hadn't thought of
and most importantly LISTENED to me
