'Dementia from the inside' SCIE video

Discussion in 'Dementia-related news and campaigns' started by Nessa456, Jan 16, 2016.

  1. Nessa456

    Nessa456 Registered User

    Nov 19, 2004
    131
    West Midlands
    I just came across this interesting video produced by SCIE - the Social Care Institute for Excellence, via a twitter link

    It gives an impression of what life is like for a person with Dementia from their own point of view

    http://www.scie.org.uk/socialcaretv/video-player.asp?v=dementia-from-the-inside

    "What is the video about?

    In this film we find out what it might feel like to live with dementia. Viewers will experience a little of what it is like to find yourself in a world that seems familiar and yet doesn’t always make sense. The incidents pictured in this film and memories recounted are based upon true experiences gathered from people living with dementia


    Messages for practice

    People with dementia:

    May interpret things that happen differently to those around them

    May have unanticipated periods of lucidity and periods of confusion alike

    May sometimes not recognise people or places they know well

    May become frustrated with themselves or those who struggle to understand them

    May not be able to articulate or communicate their anxieties, fears or frustrations

    Live with unpredictability, such as the passage of time

    Who will find this useful?

    Care staff, social workers, care managers, managers, registered managers, carers, community nurses, nursing staff, occupational therapists, people with dementia, people who use services, employers, trainers, families, friends and neighbours."


    I was interested most in the section where the lady sees the letters of the shop sign fall off and wondered how frequent an experience this is among people with dementia - it seemed unusual to me

    We don't know that all the things a person with dementia experiences are due specifically to the dementia do we?
     
  2. CollegeGirl

    CollegeGirl Registered User

    Jan 19, 2011
    9,535
    North East England
    I found that very interesting, Nessa, thanks for posting the link.

    I went on a dyslexia awareness course through work and letters 'falling off' can also be experienced by people suffering from that, too. It must be very difficult to cope with something like that happening.

    Being unaware of the passage of time and forgetting what you've done in that time must also be terrifying, along with the inability to say what you want to say, or thinking you're saying one thing when in reality you're saying another. My dad has learned that when mam says 'teapot' she means the toilet.
     
  3. Nessa456

    Nessa456 Registered User

    Nov 19, 2004
    131
    West Midlands

    Thanks, yes, it was very interesting

    What peaked my interest was that she also says that she met her partner at the Isle of Wight Festival - this then led me to consider that perhaps hallucinogenic drugs had been taken at this festival, such as LSD, which were more to blame for her hallucinations than the actual dementia

    I know the video was a composite of various peoples' experiences but the same person who attended the festival could have been the one seeing the falling letters.

    Also, when the lady said 'slipper' instead of 'supper' - I do stuff like this all the time!
    I'm 50 this year and I have noticed that I often say completely the wrong word in sentences - I think it's called aphasia and it can be a risk sign for future dementia. My Father has mid to early late stage Alzheimers and is in a care home and his late mother also had Alzheimers so I see myself heading that way too if I'm not careful!
     

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