So my husband has Huntingdons Disease for several years but now combined with associated dementia that started in June. I do have some support but struggling to balance life, my own work running a business and also caring for him with the daily routines and constant repetitiveness that are increasingly becoming more challenging. When is the right time to decide if residential care may be better as he is now becoming agitated with the grandchildren which are the life and soul of my life and I am concerned about him upsetting them. Do i get a dementia assessment via the gp or go see the specialist who deals with the Huntingdons Disease.
Dementia associated with Huntingdons Disease
- Thread starter Tilly63
- Start date
I think you need to see the consultant who deals with the Huntingdon's. You obviously will know much more about this disease than I do but my understanding is that dementia is a normal progression of the disease.
You have a rough time ahead so I wish you strength and peace as you and your family head into the future.
You have a rough time ahead so I wish you strength and peace as you and your family head into the future.
If you are wondering what care your husband may need (carers assisting with washing, dressing ets), day care, or residential care then your best bet is ask Social Services for a needs assessment - particularly if you will need assistance with the fees (ie if your husband has assets, not including the house and 50% of joint savings of less than £25,000), because Social Services will have to agree what care needs he has.
If it is the agitation that is concerning you, then you need to speak to the doctor who diagnosed him, or alternatively his may be referred to the Community Psychiatric team ( who often deal with these sort of symptoms in dementia), as there may be medication to help
If it is the agitation that is concerning you, then you need to speak to the doctor who diagnosed him, or alternatively his may be referred to the Community Psychiatric team ( who often deal with these sort of symptoms in dementia), as there may be medication to help
Hello
A close friend of my wife (PWD) and myself, is a manager of a local care home. Her husband died some years ago from HD and so too, did her son 2 years ago. She had cared for her son for quite a few years in the NH she manages and he also latterly suffered from Parkinson's and dementia.
If it would help, I could ask her about your concerns and see what advice she can offer?
Let me know.
Phil
