Ken, my husband, also has LBD and is treated with Exalon (Rivasigmine). Like others who have posted, he was first diagnosed with AZ and then 2 years later, after a visit to a specialist neurology unit, he was diagnosed as LBD. He does not have hallucinations but does imagine he sees small things, fluff etc., on the floor or table and tries to pick them up. He has mobility problems and often walks with a pronounced 'lean' to one side. He also does not 'see' stairs or steps, and becomes very fearful when walking from one area with one coloured floor to another area with a differing colour. We have problems when we are waiting at a zebra crossing for instance, where the pavement changes from one colour to another.
I 'trawled' the websites and found that my husband was not 'putting it on'. It is a symptom that sufferers cannot follow instructions, and are unable to do simple things such as cutting up their meal for themselves (depending on the severity and areas affected of course). My husband now has 24/7 care for all his basic needs and can do nothing for himself. He often has 'restless leg' syndrome and unless asleep is unable to sit without moving one of his limbs - not exactly treamours but fidgeting type movements.
One tip to carers of LBD., fight and fight like mad to get the higher rate mobility allowance. You are entitled to the higher rate of mobility allowanace if under the age of 65. It took me 6 months, letters to my MP, and a lot of heartache but I did finally get the higher rate component. I had to get physiotherapists reports and a letter from my Social Worker to back me up. I also asked for, and got, a physiotherapist to visit and give Ken some simple muscle toning excercises and also got a wheelchair so that we could go on walks. He has no problems moving around a supermarket or a couple of shops in the town centre where he can rest, but is unable to walk much without having a sit down rest.
As has been mentioned, LBD affects the 'deep brain' concerned with mobility and movement, and also the higher functioning brain concerned with memory and speech. My husband's speech is now very limited as he cannot remember the words he needs and is then so busy trying to find the words that he forgets what he was talking about.
Ken remembers all his family, by name. This worried me for a long time and I too, thought he must have been misdiagnosed because of this. He has deteriorated greatly over the last two yerars but even now, knows his immediate family and always asks me the same stock questions about them. It is almost as if he has this same list of questions in his brain about his immediate family. He does not know the names of the nurses on his ward, or any of the other patients and doesn't recognise them at all, despite being on the same ward and with the same people for the last 7 months.