Hi, I'm new. I'm not afraid to say im having a terrible time!
I have cared for my dad for just over two and a half years. I claim carers allowance and he's always hated that fact as he doesn't fully understand it and due to the paranoia and delusions caused by Parkinsons Dementia he thinks I'm taking hundreds of pounds from him??? And he frequently says I do nothing for him. Anyway my sister and his adult social worker have always always stuck up for me.
Following a delusional episode in March his previous care agency and his social worker said he needed respite and was admitted to a terrible home who made awful medication errors and I finally begged the social worker to allow me to take him home. He was in a terrible state and I immediately got him treated for a uti and his Riverstigmine was increased after I demanded a referral back to the mental health team for a meds review.
Jump forward 6months and he is much improved. So much so that he has convinced a carer with his new agency that he doesn't need my care and that I'm actually trying to fleece him of the £3000 he has to his name.
He has (with definite help from this agency carer) rang the DWP and told them (his agency actually told me this!!) that I'm fraudulently getting Carers allowance and that I'm stealing money from him. So needless to say a safeguarding referral has been raised. Of course I'm not concerned that I've done anything wrong, but my stress levels are through the roof.
However, Im deeply disturbed that I was repeatedly told that 'its the disease talking' and not worry as these are 'classic symptoms' of Parkinsons Dementia. I'm now on the verge of financial crisis as he's refusing to sign to say I care for him so will loose overnight my carers allowance payment, plus housing benefit and reduced Council tax.
I left work for him and have 3 x kids as a single parent.
As hes considered to have capacity (barely) there is nothing I can now do. This carer has fed his delusions and as has happened in the past when he suffers an acute episode or psychosis again he will phone me and say he did and said nothing of the sort !
This time it's gone too far and I'm angry, heart broken and confused. I think his SW has just given up on him!!
Has anybody ever experienced anything like this?
Ps I don't have power of attorney as he says he doesn't need it because there's nothing wrong with him
I have cared for my dad for just over two and a half years. I claim carers allowance and he's always hated that fact as he doesn't fully understand it and due to the paranoia and delusions caused by Parkinsons Dementia he thinks I'm taking hundreds of pounds from him??? And he frequently says I do nothing for him. Anyway my sister and his adult social worker have always always stuck up for me.
Following a delusional episode in March his previous care agency and his social worker said he needed respite and was admitted to a terrible home who made awful medication errors and I finally begged the social worker to allow me to take him home. He was in a terrible state and I immediately got him treated for a uti and his Riverstigmine was increased after I demanded a referral back to the mental health team for a meds review.
Jump forward 6months and he is much improved. So much so that he has convinced a carer with his new agency that he doesn't need my care and that I'm actually trying to fleece him of the £3000 he has to his name.
He has (with definite help from this agency carer) rang the DWP and told them (his agency actually told me this!!) that I'm fraudulently getting Carers allowance and that I'm stealing money from him. So needless to say a safeguarding referral has been raised. Of course I'm not concerned that I've done anything wrong, but my stress levels are through the roof.
However, Im deeply disturbed that I was repeatedly told that 'its the disease talking' and not worry as these are 'classic symptoms' of Parkinsons Dementia. I'm now on the verge of financial crisis as he's refusing to sign to say I care for him so will loose overnight my carers allowance payment, plus housing benefit and reduced Council tax.
I left work for him and have 3 x kids as a single parent.
As hes considered to have capacity (barely) there is nothing I can now do. This carer has fed his delusions and as has happened in the past when he suffers an acute episode or psychosis again he will phone me and say he did and said nothing of the sort !
This time it's gone too far and I'm angry, heart broken and confused. I think his SW has just given up on him!!
Has anybody ever experienced anything like this?
Ps I don't have power of attorney as he says he doesn't need it because there's nothing wrong with him