Crisis Point after 9 days in a care home

love.dad.but..

Registered User
Jan 16, 2014
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Kent
That is good news I hope it all goes smoothly. There was a definite time when I felt dad thought I was mum rather than his daughter. There was a change in the way he looked and spoke to me however it was endearing and gentle and not obsessive like your dad. A few times with him in his bedroom in his home and then in his NH..he would look at his bed and although he couldn't articulate it he was gesturing and trying to say "you could erm...you could..." that there was space for me to lie alongside him...I never felt it was a sexual thing more just looking for comfort and I was familiar to him although his wires were crossing! A male friend had a very difficult time with his mum thinking he was her husband and strategies had to be employed as she tried to instigate intimate touching each visit. Very sad for everyone involved.
 

Malalie

Registered User
Sep 1, 2016
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Glad to hear you are feeling better, and it seems like very positive news about the new home for your Dad - I shall be keeping my fingers crossed that all goes well this time.

That does sound like a bizarre and uncomfortable visit - my MIL was convinced that her son (my OH) was her husband and the whole thing filled him with horror - he didn't cope with it well at all. Never thought about it happening the other way round....must be quite disturbing to say the least. One certainly does have to develop a thick skin when caring for a dementia sufferer for sure!

I too have been reading the book that Beate talked about (Thanks for the recommendation Beate, if you are reading) Absolutely fascinating, although it is making me feel even more guilty having read it. I wish I had discovered it this time last year.... A real insight, and what a clever and compassionate man the author seems to be in that drugs are the last thing he wants to consider, rather than the first.
 

Beate

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May 21, 2014
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London
I too have been reading the book that Beate talked about (Thanks for the recommendation Beate, if you are reading) Absolutely fascinating, although it is making me feel even more guilty having read it. I wish I had discovered it this time last year.... A real insight, and what a clever and compassionate man the author seems to be in that drugs are the last thing he wants to consider, rather than the first.
You're welcome! :)
 

70smand

Registered User
Dec 4, 2011
269
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Essex
I have good news to report, I found a Dementia + care home close to my home and they did their assessment today and they have agreed to take dad and I will be moving him there next Wednesday 9th May.

I've also had a ‘best interests’ meeting with the Social worker going through all the possible care options for dad, looking at the pro's and con's of each of them. She explained it mainly as a form filling/reporting exercise just to show that we have considered all the options and dads best option is to move to this new care home.

She also went through all the Financial implications with me too (I think I'm almost becoming an expert, she even asked me if I fancied re-training as a Social worker, lol). This new care home is almost double the cost of his current care home, due to it being Dementia + and the ratio of staff is 2 to 1. There are currently just five residents in this unit, all receiving CHC funding, so the staff were quite surprised when I told them dad would be self funding. As it is a new unit they also didn't know how much private funding would be, but I have to yet again praise our SW, she has got them to agree to only charge my dad the LA funded rate. However, both the SW and this new care home are talking about getting dad the CHC funding. I've been told they will get dad assessed in 4 weeks and they are going to send me the criteria for the funding and I should start writing notes now as they would like my input for the assessment. I'm not holding my breath that he will get it, judging by comments I read on here, but both seem quite positive that he should be eligible, I've also got an NHS CHC 'insider' friend offering her assistance. I do wonder if different areas of the country have different views regarding awarding this. I suppose I will find out in a few weeks time.

I also visited dad today, the first time in over a week, due to me not feeling well. It was actually quite an awkward visit.

He looked really pleased when he saw me, however, once we found somewhere to sit, he started to tell me he loved me over and over again and kept asking that I didn’t leave him. He then kept calling me his wife and telling me how gorgeous I was and he told me he wanted to love me, he wanted to take me to bed and jump all over me. Yep very awkward!

After about half a hour of this and trying to tell him I loved him too but I was his daughter. I told him I needed to go to the toilet, I really needed a break. It was also quite hard not to laugh about it too as I’ve never seen my dad quite like that before. The carers I told did say this can be quite common.

When I returned the loop didn’t stop and he continued to tell me he loved me and he continued to proposition me, he even told me he wanted to take me to bed, but he didn’t want a baby. Is this an insight on his relationship with my mum in the early days?

I stayed for a hour and I told him I had to leave to do some shopping and I would come back later. I told the carers to keep an eye on him, just in case he got upset after I had left.
That great news about the care home Elle. Sorry to hear your visit was a bit awkward though. My dad mistook me for my mum a few times when I visited him in the psychiatric unit over a year ago. He was quite heavily medicated and I used to sit and hold his hand and he would lean over and shyly ask me to marry him. I was a bit embarrassed at first but then I found it really sweet wondering if that was what he was like when he was courting mum and thankfully he only did it a couple of times. Not sure if some of the medication affected him along with the Alzheimer’s but it was only a short lived phase.
Sounds like you’ve got a good social worker there and that’s encouraging to hear. I came across a few good ones and one jobsworth, whom even his colleague stated seemed to be useless and took over from him and went above and beyond for us.x
 

Elle3

Registered User
Jun 30, 2016
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That great news about the care home Elle. Sorry to hear your visit was a bit awkward though. My dad mistook me for my mum a few times when I visited him in the psychiatric unit over a year ago. He was quite heavily medicated and I used to sit and hold his hand and he would lean over and shyly ask me to marry him. I was a bit embarrassed at first but then I found it really sweet wondering if that was what he was like when he was courting mum and thankfully he only did it a couple of times. Not sure if some of the medication affected him along with the Alzheimer’s but it was only a short lived phase.
Sounds like you’ve got a good social worker there and that’s encouraging to hear. I came across a few good ones and one jobsworth, whom even his colleague stated seemed to be useless and took over from him and went above and beyond for us.x

Aww that is sweet, I think I could cope with that but sexual advances from your dad is kind of cringey. I really hope it was just a one-off or maybe the medication, not sure I could continue if it was that full on every time I saw him.
 

Elle3

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Jun 30, 2016
710
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Glad to hear you are feeling better, and it seems like very positive news about the new home for your Dad - I shall be keeping my fingers crossed that all goes well this time.

That does sound like a bizarre and uncomfortable visit - my MIL was convinced that her son (my OH) was her husband and the whole thing filled him with horror - he didn't cope with it well at all. Never thought about it happening the other way round....must be quite disturbing to say the least. One certainly does have to develop a thick skin when caring for a dementia sufferer for sure!

I too have been reading the book that Beate talked about (Thanks for the recommendation Beate, if you are reading) Absolutely fascinating, although it is making me feel even more guilty having read it. I wish I had discovered it this time last year.... A real insight, and what a clever and compassionate man the author seems to be in that drugs are the last thing he wants to consider, rather than the first.

Yes, one does have to have a thick skin, I totally understand how your OH must have felt. I'm really hoping it was a one-off as I'm not quite sure I could cope so well if it continues every time I visit. I think I would prefer for him to see me as just his carer, like he did before. I don't think he has seen me has his daughter now for at least 12 months.

Yes definitely agree about the book. I think we should take some inspiration from it and make sure when we reach the point of handing our loved into the care of others, we write as much as we can about their history, background, phobias and routines etc. Knowing and understanding someone better can help carers be more understanding and sympathetic of their behaviour and have more empathy if they behave in a certain way.

Thanks.
Elle x
 

love.dad.but..

Registered User
Jan 16, 2014
4,962
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Kent
Aww that is sweet, I think I could cope with that but sexual advances from your dad is kind of cringey. I really hope it was just a one-off or maybe the medication, not sure I could continue if it was that full on every time I saw him.
Hopefully just a one off. However if it does happen again and form a pattern there are strategies you can adopt on your body language and how and where you sit/stand that may help...plus cut your visit short if his behaviour/mood changes and it makes you feel uncomfortable. The staff will have seen this before so chat to them and they will give you tips on how to try to minimise this...although may not be possible to eliminate completely. Last resort medication can be given in extreme cases to take the edge off but that is a long way off and only if it becomes not manageable as none of us want our pwd to be medicated more than absolutely necessary. I hope it settles down and in any case as he declines that phase may go.
 

Elle3

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Jun 30, 2016
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That is good news I hope it all goes smoothly. There was a definite time when I felt dad thought I was mum rather than his daughter. There was a change in the way he looked and spoke to me however it was endearing and gentle and not obsessive like your dad. A few times with him in his bedroom in his home and then in his NH..he would look at his bed and although he couldn't articulate it he was gesturing and trying to say "you could erm...you could..." that there was space for me to lie alongside him...I never felt it was a sexual thing more just looking for comfort and I was familiar to him although his wires were crossing! A male friend had a very difficult time with his mum thinking he was her husband and strategies had to be employed as she tried to instigate intimate touching each visit. Very sad for everyone involved.

Thanks love.dad.but. So do I.

It does seem to be a bit of common thing. The carers asked if I looked a bit like my mum and maybe I do and if his mind has gone back to a time when he was first married to my mum, maybe that could explain it. But still rather uncomfortable and I hope it's just a one off or I will have to make sure I stay with him in busy areas.

Take care.
Elle x
 

love.dad.but..

Registered User
Jan 16, 2014
4,962
0
Kent
Thanks love.dad.but. So do I.

It does seem to be a bit of common thing. The carers asked if I looked a bit like my mum and maybe I do and if his mind has gone back to a time when he was first married to my mum, maybe that could explain it. But still rather uncomfortable and I hope it's just a one off or I will have to make sure I stay with him in busy areas.

Take care.
Elle x
My voice is quite similar to mum's when she was alive and as dad declined I felt that was the trigger for a change in dad thinking I was mum plus I was very hands on even in his NH and Mum was of a generation where she was the home maker and helped dad as they aged with personal care. So I could totally understand his thinking.
 

Juliasdementiablog

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Oct 23, 2017
80
0
Brighton
It sounds like this care home is not able to look after people with dementia, even though they are supposed to be 'dementia' specialist. They should be able to recognise his concerns (desire to get out and to get money), and try techniques to pacify him. Staff members could try saying, 'I hate it when the bank is closed. So annoying (showing empathy). Unfortunately the Bank is closed right now, but we could go in the morning. I could lend you some money until then? Would that help? How much do you need? (showing they have understood the need) What do you want to buy? I can see if we have some....? (providing practical support) Meanwhile would you like to join me for a cup of tea.....(distraction) etc etc etc. If prompted by such compassion and understanding, your father started to explain his frustration, the staff member should then listen carefully to what he has to say so they can understand what his needs are which might help with future distress. I have the same problem with my mother's care home. The staff are lovely, the management open, but they refuse to give staff adequate training and they make the most basic errors in dementia care.

There is a lot of understanding and knowledge of good practice about how to really care for people with dementia, and so few homes use it. Makes me mad. Care homes that don't invest in good training for their staff to teach them about wellbeing, communication, and genuine person-centred care are failing in their duty to look after people living with dementia. Given they have given up on your dad so soon I would suggest you find another home that is able to respond to his (not unusual) needs.

You can ask them questions based on the experience at this care home. How would you care for my dad, these are the things that have come up in the previous care home. See how well they answer.



Apologies for the lengthy post, but I don't know what to do.

After just 9 nine days in a Care Home, the home have called to say they have reached crisis point and they cannot cope with my dad and he needs to leave.

My dad has Advanced Dementia and was living alone in his own home, the Social worker and myself agreed that he was no longer safe to live at home, due to an escalating number of issues; mainly going out at all times of day or night in any weather, waiting for the bank to open, burning his leg on an electric fire, fusing lights by screwing in the wrong bulbs into light fittings. Burning his kettle and releasing toxic fumes in his home, not going to bed, not being able to prepare simple meals (teabags on 2 slices of bread was a sandwich and drinks: cold water with milk in it). Constantly hiding things and believing there are people in his home, not able to recognise his own reflection and thinking the man is spying on him from next door and getting abusive and violent because of it. I could go on.

So I found a care home that dealt specifically with dementia sufferers, it was in the town where he lives and it was only small with 31 residents. A place became available and I took him and he moved in there on Friday 13th April.

On the first Saturday evening he was reported to safeguarding due to an incident with another male resident he got verbally abusive and attempted to get hold of his arm. So he was reported.

Then things settled down apart from him wandering around the home, trying doors and windows trying to get out.

I visited him on Wednesday 18th April, he had no recollection that it was me that took him there, because he kept asking how did I know he was there. He said he liked it and he had made friends, not once did he ask to go home, the only thing he asked to do was to go and get some money.

Saturday 21st April, I visited him again with my husband, again he asked how did I know he was there, did his dad tell me. When I asked him if he was liking living there, he said he had lived here for years and it was good. Later he asked me how my dad was.

Saturday evening around 10.20pm I get a phone call from the home, dad has escaped by climbing out of a window. Now I have had conflicting information that the window lock was faulty, but I've also been told he broke it. They found him about 11.10pm quite a distance from the home, not heading home or to the bank. But their biggest worry is that the home backs onto a canal walk, which is very dark and they were worried he might have headed that way and could potentially have fallen into the canal and drowned. Luckily he hadn't but the risk is there.

I spoke to the home the next morning and he settled fine once he was back in the home.

Sunday 22nd April I get a phone call at 8.15pm dad has his coat on and is trying to get out of the home again and they currently are having to give him one to one attention, can I come down and settle him and be with him, so they can get other residents to bed. So off I go, when I arrive dad greets me saying "oh good she can take me now". I find out he wants to get some money from the bank. (This is his obsession). It took me about 30 mins to convince him there was no money, the bank was shut, it was dark and it was bed time and to take his coat off. He accepts that the home is now where he Iives and he likes it, but still feels the need to get out. I finally left him around 10.15pm happy to get ready for bed.

This morning, I got a call from the manager of the home, she said due to the issues over the weekend they feel they cannot give dad the one to one support that he needs and they have reached crisis point and want him removed. She said she had spoken to the Social worker and I have to call her.

I have spoken to the Social worker and she is at a loss for what to do. I have said dad cannot return to his home, that is not an option. She has gone away to seek advice and hopefully a solution.

This is a nightmare.

Elle x
 

Elle3

Registered User
Jun 30, 2016
710
0
It sounds like this care home is not able to look after people with dementia, even though they are supposed to be 'dementia' specialist. They should be able to recognise his concerns (desire to get out and to get money), and try techniques to pacify him. Staff members could try saying, 'I hate it when the bank is closed. So annoying (showing empathy). Unfortunately the Bank is closed right now, but we could go in the morning. I could lend you some money until then? Would that help? How much do you need? (showing they have understood the need) What do you want to buy? I can see if we have some....? (providing practical support) Meanwhile would you like to join me for a cup of tea.....(distraction) etc etc etc. If prompted by such compassion and understanding, your father started to explain his frustration, the staff member should then listen carefully to what he has to say so they can understand what his needs are which might help with future distress. I have the same problem with my mother's care home. The staff are lovely, the management open, but they refuse to give staff adequate training and they make the most basic errors in dementia care.

There is a lot of understanding and knowledge of good practice about how to really care for people with dementia, and so few homes use it. Makes me mad. Care homes that don't invest in good training for their staff to teach them about wellbeing, communication, and genuine person-centred care are failing in their duty to look after people living with dementia. Given they have given up on your dad so soon I would suggest you find another home that is able to respond to his (not unusual) needs.

You can ask them questions based on the experience at this care home. How would you care for my dad, these are the things that have come up in the previous care home. See how well they answer.


Thank you Julia for your reply. Both myself and the SW are very disappointed with the Care Home and their inability to understand his needs and distract him and that they took the decision so quickly to ask for him to be removed.

We have moved on a bit since my original post, I did an update post yesterday. I have now found a new Dementia+ care home for my dad, which is closer to my home. After my experience with the first home, it did help me with how I viewed other homes and what questions I asked and what I looked for in the home. Before going into a home I would never have said my dad was challenging, yes stubborn, a loner and fixed on routines, but the home seemed to bring out the worst in him.

This new home he will be moving into next Wednesday (9th May) have already talked about what strategies they will try using with dad, but have said they are also very flexible and open to suggestions. They currently only have 5 residents and the staff ratio is two residents to one staff, but at present it's one to one and they allow new residents 1-2 weeks to settle before they will introduce a new resident. This allows them to settle and get to know the home and staff and for all the staff to get to know him. They've already started talking about getting some bricks in the garden, so dad could have a go at building a wall for them, if he wants, he used to be a bricklayer.
 

Juliasdementiablog

Registered User
Oct 23, 2017
80
0
Brighton
Thank you Julia for your reply. Both myself and the SW are very disappointed with the Care Home and their inability to understand his needs and distract him and that they took the decision so quickly to ask for him to be removed.

We have moved on a bit since my original post, I did an update post yesterday. I have now found a new Dementia+ care home for my dad, which is closer to my home. After my experience with the first home, it did help me with how I viewed other homes and what questions I asked and what I looked for in the home. Before going into a home I would never have said my dad was challenging, yes stubborn, a loner and fixed on routines, but the home seemed to bring out the worst in him.

This new home he will be moving into next Wednesday (9th May) have already talked about what strategies they will try using with dad, but have said they are also very flexible and open to suggestions. They currently only have 5 residents and the staff ratio is two residents to one staff, but at present it's one to one and they allow new residents 1-2 weeks to settle before they will introduce a new resident. This allows them to settle and get to know the home and staff and for all the staff to get to know him. They've already started talking about getting some bricks in the garden, so dad could have a go at building a wall for them, if he wants, he used to be a bricklayer.
Oh wow! They sound great. So reassuring and nice to hear this. Sorry I spotted the old and not the new post. Silly me. Great to hear things have moved on. Will follow to hear how things go. Good luck.
 

Sirena

Registered User
Feb 27, 2018
2,332
0
Elle I'm so glad you have found a new CH which sounds like it will deal with your dad's needs really well. The current care home really let you down and it must be such a relief to find there is somewhere nearby which seems absolutely right for him - great that you had such good support from SS too.
 

MaNaAk

Registered User
Jun 19, 2016
11,885
0
Essex
Thank you ManNaAk. Well when you start looking for advice on a care home etc, by the time I get this all sorted I just might be an expert, lol! But I will definitely be there to give you support, without this forum I really don't know what I would do. x

Thankyou Elle!

I hope you are a little more sorted now but as for dad and myself the dementia nurse came the other week and put donepezil up to 10mg. Last night was the first time that dad had this with his blister pack and apart from being tired today so far so good. However tomorrow he starts at a local day centre and I am trying to keep my fingers crossed that all goes well and that he doesn't start getting agitated.

The next stage is for me to get carers in again but with a different agency and some respite care with a local care home.

Hope your dad is a little more settled and just one more thing other people in the adult social care sector have said that to describe my dad as 'vilent' was wrong. He was aggressive but he is in his eighties with alzheimers and deafness!

MaNaAk
 

Elle3

Registered User
Jun 30, 2016
710
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Thankyou Elle!

I hope you are a little more sorted now but as for dad and myself the dementia nurse came the other week and put donepezil up to 10mg. Last night was the first time that dad had this with his blister pack and apart from being tired today so far so good. However tomorrow he starts at a local day centre and I am trying to keep my fingers crossed that all goes well and that he doesn't start getting agitated.

The next stage is for me to get carers in again but with a different agency and some respite care with a local care home.

Hope your dad is a little more settled and just one more thing other people in the adult social care sector have said that to describe my dad as 'vilent' was wrong. He was aggressive but he is in his eighties with alzheimers and deafness!

MaNaAk

Hi MaNaAk,

It is so wrong when they say they are violent, especially when it's someone with Alzheimers as well as deafness it must a very scary situation for your dad and no wonder he becomes aggressive he probably just doesn't understand what is happening and they obviously have not much understanding either of how to help him.

I hope the visit to the day centre went well today and your plans for getting carer and respite care are going well? I have my fingers crossed for you.

Take care.
Elle x
 

MaNaAk

Registered User
Jun 19, 2016
11,885
0
Essex
Hi MaNaAk,

It is so wrong when they say they are violent, especially when it's someone with Alzheimers as well as deafness it must a very scary situation for your dad and no wonder he becomes aggressive he probably just doesn't understand what is happening and they obviously have not much understanding either of how to help him.

I hope the visit to the day centre went well today and your plans for getting carer and respite care are going well? I have my fingers crossed for you.

Take care.
Elle x

Thankyou Elle!

Unfortunately I took Dad at 10.00 am but it seems that he started getting agitated because he's so used to having me around and I ended up having to collect him at 11.30 am so I am going to phone another care agency tomorrow and then the care home. I think we're all on a roller coaster ride here. You might be interested to know that the day centre said that I should bring dad back after respite and see how he goes from there.

MaNaAk
 

Frankie15

Registered User
Dec 13, 2016
17
0
Hi there I'm so sorry to hear this. I hope you get some answers soon. Ask your SW about continuing health care funding which can be applied for to fund one to one care via the CCG following assessment by health and social care staff.
Hoping your dad is soon settled and you find peace.
 

Elle3

Registered User
Jun 30, 2016
710
0
Thankyou Elle!

Unfortunately I took Dad at 10.00 am but it seems that he started getting agitated because he's so used to having me around and I ended up having to collect him at 11.30 am so I am going to phone another care agency tomorrow and then the care home. I think we're all on a roller coaster ride here. You might be interested to know that the day centre said that I should bring dad back after respite and see how he goes from there.

MaNaAk

So sorry to hear that MaNaAk. I know it might defeat the object initially, but when you do take him back, have you thought about staying with him, you could encourage him to interact with others but knowing your there might ease his anxiety. You can then start to step back into the background and just keep an eye on him, but step in again if he starts feeling agitated. Sometimes these things are a work in progress and we learn how to deal with our loved ones in the best and most effective way.

I'm going to do an update post later about moving dad into his new home, it went as well as could be expected, but you learn from these experiences too.

Take care.
Elle x
 

MaNaAk

Registered User
Jun 19, 2016
11,885
0
Essex
So sorry to hear that MaNaAk. I know it might defeat the object initially, but when you do take him back, have you thought about staying with him, you could encourage him to interact with others but knowing your there might ease his anxiety. You can then start to step back into the background and just keep an eye on him, but step in again if he starts feeling agitated. Sometimes these things are a work in progress and we learn how to deal with our loved ones in the best and most effective way.

I'm going to do an update post later about moving dad into his new home, it went as well as could be expected, but you learn from these experiences too.

Take care.
Elle x

Thankyou Elle!

Yes! These things are sent to try us. I should be at a rehearsal but I tell myself that with perseverance I will get back to orchestra.

MaNaAk