Dad's had dementia for years - no formal 'type' short term memory loss and some confusion. Mum has been his carer with help from morning and evening carers.
Mum has been showing signs of dementia for the last year. After many months of waiting for diagnosis, she was diagnosed with rapidly shrinking brain, alzheimers and vascular dementia. She started donepezil last week, had bad reaction (maybe) and blue lighted into hospital Weds night, possible TIA. Still in hospital having tests, but medically not bad now. Dipping in and out of sanity. Sweet mild mannered mum turns into mad lady sometimes and delusional, thinks we're all criminals and the police are coming for us. Hates me a lot of the time. |But lovely mum sometimes.
We got dad into emergency respite care home, which is safe but not really meeting his needs. As he has no short term memory, he needs someone at his side constantly telling him where he is and where mum is. |This is not possible with the staff ratios. In first day he's lost his glasses, his walking stick, his tv remote and his head wound has been treated incorrectly despite our medical instructions.
Mum's care in hospital questionable. No joined up communications. No-one looks in records. We don't get to see the doc as he comes round mornings and we are not allowed on ward till 1pm.
We need to find a home for both of them, but have no time to visit and check out homes, as we are both with either or them most of the time. I've got MS and need to maintain my health so I don't get ill. My sister lives locally to them, I live about 1.5 hours away.
Self funders so no help from social services. Alz Soc sympathetic but other than giving helpline numbers not much use.
Hello all you fellow crisis livers out there. Has anyone got anything in the way of good advice for us?
Sorry if I sound nuts. I rather think I am.
Mum has been showing signs of dementia for the last year. After many months of waiting for diagnosis, she was diagnosed with rapidly shrinking brain, alzheimers and vascular dementia. She started donepezil last week, had bad reaction (maybe) and blue lighted into hospital Weds night, possible TIA. Still in hospital having tests, but medically not bad now. Dipping in and out of sanity. Sweet mild mannered mum turns into mad lady sometimes and delusional, thinks we're all criminals and the police are coming for us. Hates me a lot of the time. |But lovely mum sometimes.
We got dad into emergency respite care home, which is safe but not really meeting his needs. As he has no short term memory, he needs someone at his side constantly telling him where he is and where mum is. |This is not possible with the staff ratios. In first day he's lost his glasses, his walking stick, his tv remote and his head wound has been treated incorrectly despite our medical instructions.
Mum's care in hospital questionable. No joined up communications. No-one looks in records. We don't get to see the doc as he comes round mornings and we are not allowed on ward till 1pm.
We need to find a home for both of them, but have no time to visit and check out homes, as we are both with either or them most of the time. I've got MS and need to maintain my health so I don't get ill. My sister lives locally to them, I live about 1.5 hours away.
Self funders so no help from social services. Alz Soc sympathetic but other than giving helpline numbers not much use.
Hello all you fellow crisis livers out there. Has anyone got anything in the way of good advice for us?
Sorry if I sound nuts. I rather think I am.