1. janjan

    janjan Registered User

    Jan 27, 2006
    229
    Birmingham
    Mom is having the cpn coming to see her on Wednesday,about some help with my dad. When i rang her asking her to come to see mom because she was now finding it difficut to cope, she asked me if i could be present when she comes to visit mom, as last time she came round to see her,[ 8 months ago ] she got the feeling from mom that she was copeing fine. I said i would be there. I wanted to know if mom would be able to have someone to come round to either bath or shower dad at least once a week. She said they don't do hands on. Can't they do this unless they are in a residential or nursing home? I thought i would wait till Wednesday, but its on my mind, as anyone got any idea's what she means about this? :confused: Janet :confused:
     
  2. susieb

    susieb Registered User

    Apr 16, 2006
    26
    Think the bath / shower is done by care staff - probably social services. The CPN will help you to access the services you need and provide support / expertise etc. The hands on care is not done by qualified CPN, as far as I know - I think its a pity myself because to deal with someone with AD, you need to know them very well, or have a lot of knowledge about the condition.

    Good luck
     
  3. connie

    connie Registered User

    Mar 7, 2004
    9,519
    Frinton-on-Sea
    The CPN should be able to point you in the right direction.

    I now have to have a care in every day to help Lionel with his daily toiletting needs. Unfortunately we ahve to pay for all our care, but we need it so.......

    Hope you get things sorted out,
     
  4. Norman

    Norman Registered User

    Oct 9, 2003
    4,348
    Birmingham Hades
    Hi Janjan
    the first thing that you need is a community care assessment,CPN should be able to point you in the right direction to Social services.
    You may then get help with funding for bathing etc from SS in house staff or from an agency.
    Do You have Crossroads in your part of Birmingham?
    The following fact sheet will help.

    http://www.alzheimers.org.uk/After_diagnosis/Getting_support/info_communityassessment.htm
    Let us know how you get on
    Norman
     
  5. Margarita

    Margarita Registered User

    Feb 17, 2006
    10,824
    london
    Like Coonie & norman Said
    CPN done a care plan for mum then Social services from the elderly section came around done another care plan

    like norman said
    Then Disabilites Adaptation woman came around & did a care plan as in what mum need in the house to make it more easyer for her to get around IE puting in a shower
     
  6. janjan

    janjan Registered User

    Jan 27, 2006
    229
    Birmingham
    Thanks for all your helpful infomation everyone. :) I'm armed with a list ready for tomorrow, the only thing i'm realy worried about is if she sends dad for an assesment obout his tablets he takes for AD. I'ts been over three years since he was last assest for them. If they take him off aricept, i know he will go down fast. Thanks again. It's great to know tp is here for me in times of need, and we do get some laughs to keep us going. ;) Janet ;) Norman. Crossroads was in the 70's, Birmingham as ghanged alot since then.[ you want to see the Bull Ring in the town centre] There's everything for the youth of today. Wish it would have been like it in the 70's when i was in my teen's.:D
     
  7. noelphobic

    noelphobic Registered User

    Feb 24, 2006
    3,452
    Liverpool
    Crossroads

    I don't think that was the Crossroads that Norman had in mind :D

    I think this is it

    http://www.crossroads.org.uk/
     
  8. Norman

    Norman Registered User

    Oct 9, 2003
    4,348
    Birmingham Hades
    Noelphobic
    you beat me to it!!
    Also I do live in Brum
    Norman
     
  9. janjan

    janjan Registered User

    Jan 27, 2006
    229
    Birmingham
    :eek: Sorry Norman misunderstood your post. As it happens CPN phoned in sick, have to wait for another appointment now. Not having a very good day today either. :mad: Janet :mad:
     
  10. noelphobic

    noelphobic Registered User

    Feb 24, 2006
    3,452
    Liverpool
    I hope you don't have to wait too long and that you have a better day tomorrow. :)
     
  11. Margarita

    Margarita Registered User

    Feb 17, 2006
    10,824
    london
    janjan

    Can you not phone Social services from the elderly section ,?by pass the CPN ,can’t believe how no one done a care plan for your mother ?

    In London fulham I phone my local town hall & they put me though to the elderly section & I talk to a Socail worker .

    If I had know this I would not have waited for the CPN ,thinking about it now .

    Just say you need to talk to a social worker for the elderly to get some advice & stress how your mum need help & how do you go about it . It Just sound so unfair
     
  12. janjan

    janjan Registered User

    Jan 27, 2006
    229
    Birmingham
    She's coming tomorrow morning now, at least we hav'nt had to wait to long. I don't work Fridays, so i hav'nt had to swop my shifts around again. Will let you know what happens. :D Janet :D
     
  13. Margarita

    Margarita Registered User

    Feb 17, 2006
    10,824
    london
    Great news how did it go ?
     
  14. janjan

    janjan Registered User

    Jan 27, 2006
    229
    Birmingham
    Margarita

    Well what a surprise, I thought she was the cpn. She was dad's new social worker.... We are at square 1 again. When i rang her a few weeks ago, i thought the number mom gave me was her cpn nurse because i had'nt spoke to dad's social worker since i rang her to ask her if she could go to see mom about help for dad .That was 8 months ago. Apparently dads social worker went to see mom then, said she would send someone round to look at moms bathroom, to see what they needed to help bathing or showering dad. They never came, it must have got lost in the system. So now we have to wait for them to come again. Anyway she is coming to see us in two weeks time to do a full assesment. With in the last 8 months alot has changed, and she wanted to know why dad has'nt been reassesed for his tablets in the last three and a half years.She is dad's new social worker thats why i didn't reconise her voice on the phone. Anyway she sorted out mom's next respite while she was there, and we made a point that we wanted to keep dad at home as long as we can, but mom was finding that she now needs extra help to be able to do this. Sorry this has been a bit drawn out, but you can imagine how fed up i feel. :mad: Janet :mad:
     
  15. Margarita

    Margarita Registered User

    Feb 17, 2006
    10,824
    london





    But is ant it better as now social worker can sort out what you wanted ? did you ask her about that?


    Thats good new , when did you book it for ?as hopefully when your dad gets back home , the SW should have a carer in place in your mum house to help her ,

    My mum comeing home on the 15 may & the SW put it in writeing & sent it to me that she has sorted out a carer to help me in the Morning & AZ day center 2 times a week .

    when SW come agina ask her for a cope of the care plan from the full assesment she does for your dad

    I know your feeling angry now & I know how you feel, but now you got the ball rolling again :) a tip that may help is when they come around for bathroom make sure you take there name & number & keep ringing them up every mouth for updates , & they put it all in writing what they are going to do & send it to you .

    It took nearly a year for mum to get a shower & take the bath out & a lot of ringing from me .
     
  16. Margarita

    Margarita Registered User

    Feb 17, 2006
    10,824
    london
    ps

    Make sure that you ask for a carer to come in every day to help your mum shower or bath your dad ,that’s what they are doing for me
     
  17. Lynne

    Lynne Registered User

    Jun 3, 2005
    3,433
    Suffolk,England
    Margarita: you got there just before me ;)

    Janet: I agree with Margarita's suggestion to make notes of dates & names for who said things would be done, and the dates by which they should be done, and make sure the social worker/CPN or whoever knows that you are keeping a record. I hope you never have to use it, but it seems to focus people's minds if they know there is a written record of what's been said and promised.

    Best wishes
     
  18. angela w

    angela w Registered User

    Hi sorry hope im not interupting. Ive been reading the messages on here, its my 1st visit and it upset me, my mum has been diagnosed about 3 months ago. I feel ive lost my best friend
    Angela w
     
  19. Margarita

    Margarita Registered User

    Feb 17, 2006
    10,824
    london
    Hi angela


    welcome no your not interupting

    No how you feel, it’s a shock hard to take in, how old is you mum? I read in your profile you’re a 3 year student what are you studying? Do you live with your mum? Gosh hope you don’t mind me asking :)
     
  20. janjan

    janjan Registered User

    Jan 27, 2006
    229
    Birmingham
    Angela

    Welcome to tp. You will get lots of helpful infomation from everyone here. I didn't find it up untill 6 months ago and wish i found earlier. It made me fell so sad that i remember feeling that you have lost your best friend. Its been a long time since dad was diagnosed with AD, and although he is very ill now theres still that sparkle in his eyes. He's still got the wonderfull sense of humour that we both used to laugh at the same things but i know through all this he's always been my best friend, and so will you with your mom. My heart goes out to you, and i would like to send you a big hug. This has been for me difficult to write through the tears for how you are feeling at this time. Keep posting let us know how things are going. :) janet :)
     

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