Hello, I have posted on here previously and each time received good honest advice and sadly I find myself here again at desperate times.
Mum has had alzheimers past seven years diagnosed aged 59. The everyday struggle for her and our family to come to terms, support and care has been overwhelming. My father,brother and I have continued to care and look after my mother all this time feeling we can manage and carried on to ensure mum has best care and happiness as much as possible.
I have undertook a huge amount of responsibility and without bragging or saying my father and brother have not done as much as me I have. Everything, personal care, cleaning, dressing, feeding, outings. I have done it because it's my mother, my best friend and I wanted to do it all. My health has greatly suffered and a whole lot of things pushed to one side and after last couple of months it has been so bad.
Mum has been diagnosed now epileptic a year back which has just been horrendous watching her seizure and the aftermath each time.
Mum was admitted to hospital mid Nov 16 with pneumonia and blood infection and was only allowed home on 23 Dec 16. During this period we were told by consultants and doctors that mum was very ill and to expect the worst. It was horrific. The day I had always feared and I knew it before they told me. I had break news to dad and brother.
She pulled through it with antibiotics treatment however we knew she was still tired and weak. We had only been out of hospital for a week and returned on 1st Jan 17 having a bad seizure.
Again went through same situation. Mum had leaked fluid and now treated for pneumonia again. We got through infection however still in same position of unwell.
Mum was discharged home on 13 Jan 17 and after three hours at home we were back in hospital after suffering another big seizure
We are still in hospital today. I can see my mother going downhill and I speak to doctors and would rather they are honest. No one knows what will happen next, how long to go or what but it's terrifying and so painful for us all to watch. At times she perks up and laughs ridiculously and it's great but I just wish I knew what is happening to her.
What we face now is if mum is discharged what do we do next. Neither of us want mum to
Go into care but it is just impossible to care at home and be there 24/7. I want to be there,so do dad and brother and they say they will cope but I'm the only one being realistic here. Before I would never ever imagine I would say these things.
One more concern is mums donepezil has been stopped due to seizures and epileptic medication they have increased for mum. I believe there can be withdrawals from this and a further rapid decline?
I know no one can see into future but I would appreciate any advice?
Thank you so very much x
Sent from my iPhone using Talking Point
Mum has had alzheimers past seven years diagnosed aged 59. The everyday struggle for her and our family to come to terms, support and care has been overwhelming. My father,brother and I have continued to care and look after my mother all this time feeling we can manage and carried on to ensure mum has best care and happiness as much as possible.
I have undertook a huge amount of responsibility and without bragging or saying my father and brother have not done as much as me I have. Everything, personal care, cleaning, dressing, feeding, outings. I have done it because it's my mother, my best friend and I wanted to do it all. My health has greatly suffered and a whole lot of things pushed to one side and after last couple of months it has been so bad.
Mum has been diagnosed now epileptic a year back which has just been horrendous watching her seizure and the aftermath each time.
Mum was admitted to hospital mid Nov 16 with pneumonia and blood infection and was only allowed home on 23 Dec 16. During this period we were told by consultants and doctors that mum was very ill and to expect the worst. It was horrific. The day I had always feared and I knew it before they told me. I had break news to dad and brother.
She pulled through it with antibiotics treatment however we knew she was still tired and weak. We had only been out of hospital for a week and returned on 1st Jan 17 having a bad seizure.
Again went through same situation. Mum had leaked fluid and now treated for pneumonia again. We got through infection however still in same position of unwell.
Mum was discharged home on 13 Jan 17 and after three hours at home we were back in hospital after suffering another big seizure
We are still in hospital today. I can see my mother going downhill and I speak to doctors and would rather they are honest. No one knows what will happen next, how long to go or what but it's terrifying and so painful for us all to watch. At times she perks up and laughs ridiculously and it's great but I just wish I knew what is happening to her.
What we face now is if mum is discharged what do we do next. Neither of us want mum to
Go into care but it is just impossible to care at home and be there 24/7. I want to be there,so do dad and brother and they say they will cope but I'm the only one being realistic here. Before I would never ever imagine I would say these things.
One more concern is mums donepezil has been stopped due to seizures and epileptic medication they have increased for mum. I believe there can be withdrawals from this and a further rapid decline?
I know no one can see into future but I would appreciate any advice?
Thank you so very much x
Sent from my iPhone using Talking Point