1. Expert Q&A: Benefits - Weds 23 October, 3-4pm

    Our next expert Q&A will be on the topic of benefits. It will be hosted by Lauren from our Knowledge Services team. She'll be answering your questions on Wednesday 23 October between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

Could he have Parkinsons too?

Discussion in 'I have a partner with dementia' started by thebes, Nov 21, 2015.

  1. thebes

    thebes Registered User

    Feb 10, 2014
    163
    London
    The more I observe what is happening to my OH and the recent physical deterioration, the more I wonder if he is developing Parkinsons too. We are due back at the doctor's in a couple of weeks after a month off medication. So far he is more wakeful and content but walking and balance going downhill all the time. Even if it is Parkinsons is there any treatment he can have?
     
  2. nitram

    nitram Registered User

    Apr 6, 2011
    19,045
    Male
    North Manchester
    Even if it is Parkinsons is there any treatment he can have?

    There are medications that can suppress some of the symptoms but some are contraindicated with some forms of dementia.

    What makes you suspect Parkinsons, tremor, gait, or something else?
     
  3. jikkie

    jikkie Registered User

    Aug 23, 2015
    64
    My OH has Parkinsons too now. The doctor noticed he was walking oddly, kind of pushing his heels forward, rather than lifting the foot. Then a retired doctor neighbour noticed too and mentioned it to me. No tremors. But he is generally very stiff. No facial expression.. Holds his arms stiffly while walking too. Basically all his movements are stiff and unnatural.

    It took 5 mths to get to see someone. He has started on the drug, and we go back in 3 mths. I think there is a small improvement, but a bit marginal.
     
  4. thebes

    thebes Registered User

    Feb 10, 2014
    163
    London
    Partly lack of balance and swallowing problems, but mainly it is the recent very odd walk where his right leg has periods of not cooperating with him, and also spells of rigidity in his limbs. He does not have tremors , his face is more impassive but not totally fixed in expression
     
  5. nitram

    nitram Registered User

    Apr 6, 2011
    19,045
    Male
    North Manchester
    I'm not a medic but speaking from experience, I watched several neurological examinations of my wife and always asked why they did something and what they were looking for, I think it should be investigated.

    I would write everything down so that when you visit the doctor you don't forget anything.

    If you flex his arm does the elbow move smoothly or is there resistance, the phrase is cogwheel movement which I think is self explanatory?
     
  6. thebes

    thebes Registered User

    Feb 10, 2014
    163
    London
    Thanks I will try that tomorrow, and in the meantime start writing it all down for when we see our GP again soon.
     
  7. stanleypj

    stanleypj Registered User

    Dec 8, 2011
    10,659
    North West
    I agree with nitram. The cogwheel arm movement seems very significant. The consultant who first confirmed that Sue probably had PD picked up that very symptom. Other docs we've seen though have said either that there are just Parkinsonisms that she has or that the various possible symptoms are all down to the AD. But as the first doc said 'Let's not get hung up on labels'. Sue was prescribed sinemet and overall I think it may have helped though it may also have caused or contributed to fits. It certainly caused some vomiting initially.
     
  8. Marylil52

    Marylil52 Registered User

    Mar 26, 2015
    39
    Could he have Parkinson's too?

    I'm not a medic and am very wary of careless comments. But... My husband had cognitive difficulties which were getting worse; he then developed twitches in his eyes, and tremors in his legs. In due course, after much testing and exploration, the (wonderful) doctors at the National Hospital for Neurology and Neurosurgery in London diagnosed an atypical form of Dementia with Lewy Body. This is related to Parkinson's but affects a different part of the brain, as I understand it. The cognitive trouble and the tremors have got a good deal worse, as has the lack of facial expression (no hallucinations thank goodness) but Sinemet, recently begun at low dose, has helped quite a lot with the tremors.

    Might it be worth asking your local people about the possibility of DLB? I gather it's frequently under-diagnosed. One important reason for obtaining a diagnosis is that with DLB many antipsychotic drugs can be extremely dangerous.

    I hope this is useful and not either alarmist or misleading. I wish you good luck.
     

Share This Page

  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.
  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.