Continuing healthcare!!!

[janey21]

hi,

im frustrated and confused. my grandad whom is currently in respite while we wait for our care package for him to come home qualifies for continuiong healthcare. what i dont understand is that our local PCT does not provide overnight care. with this i mean positional changes in the night. i am at home caring for him during the day while my mam works full time and then when she comes in i work on an eveing and im studying too. i understand its hard and drainging the caring which we do but wouldnt you think that they would provide some help to come in during the night to turn and change as getting up at 4am and having broken sleep is hard. i can manage but its very hard when mam has to get back up again at 7am and do a responsible job.

 

[noelphobic]

I've moved this from 'After dementia - dealing with loss' as I think it is more appropriate here and may get more replies.

 

[Amy]

Janey will the Health authority finance private carers through the night?
How often does grandad have to be turned?

Love Helen

 

[Skye]

Janey, I'm sorry you're in that position. I know how hard it is to cope when every night is broken, and I'm not holding down a job as well!

Have you tried social services? Even if the PCT will not fund overnight care, SS might arrange for someone to come in at intervals.

I don't know, but it's worth asking.

Love,

 

[jenniferpa]

I assume when you say continuing healthcare you are talking about fully funded NHS care? Because if that's the case, you "should" be either provided with all the nursing care required OR provided with the funds to purchase that care from elsewhere. After all, if he was resident in a nursing home, NHS nurses don't come in during the night (or at any other time) to provide these services - the nursing home provides them and receives funding from the NHS to do so.

Jennifer

P.S. I note you're in sunderland. If you come under the Sunderland Teaching Primary Care Trust, their webpage says the following "Funding can also be used to fund specialist support and equipment, additional services, equipment which is not available through mainstream services"