New on here. My husband has a diagnosis of mild Alzheimers (initially diagnosed in 2014)and has signed a letter to our GP stating that he gives permission for me to be able to speak to the doctor re any medical issue of his.
He went for a consultant check back in 2016 where a Spect scan was ordered to double check his original diagnosis. During this apppointment I was able to speak separately to the consultant to explain the true situation at home. My OH always says he just has a bit of difficulty finding the right word but that’s all - he can present extremely well.
Subsequently a letter was sent to him outlining what had been said in the appointment including things which I had told the specialist alone and in confidence. I complained strongly and I insisted that this mustn’t happen again.
Recently I had cause to phone Admiral nurses re ongoing changes in my OH’s behaviour and confusion.. I was put onto someone in the MHU who said they’d arrange for our GP to call him in for a blood test to rule out any infections as a potential cause of his slight deterioration and then take it from there. A few days later my husband received a letter marked private and confidential. He gave it to me to open and read it over my shoulder. It was a copy of a letter sent to our GP from the MHU and they spoke about OH having a blood test to rule out an infection as a possible cause ‘..of Mr X’s aggressive presentation..’. OH was extremely unhappy and angry and wanted to know who said he was aggressive etc etc.
Does anyone on here know where I stand in terms of confidentiality? As it is, I feel totally on my own. If I need to speak to anyone about how my husband is in the future, I feel I can’t trust that whatever I say won’t be reported back to him. I just feel so alone and sort of ‘betrayed’ if that doesn’t sound too dramatic. Sorry for such a long post.
He went for a consultant check back in 2016 where a Spect scan was ordered to double check his original diagnosis. During this apppointment I was able to speak separately to the consultant to explain the true situation at home. My OH always says he just has a bit of difficulty finding the right word but that’s all - he can present extremely well.
Subsequently a letter was sent to him outlining what had been said in the appointment including things which I had told the specialist alone and in confidence. I complained strongly and I insisted that this mustn’t happen again.
Recently I had cause to phone Admiral nurses re ongoing changes in my OH’s behaviour and confusion.. I was put onto someone in the MHU who said they’d arrange for our GP to call him in for a blood test to rule out any infections as a potential cause of his slight deterioration and then take it from there. A few days later my husband received a letter marked private and confidential. He gave it to me to open and read it over my shoulder. It was a copy of a letter sent to our GP from the MHU and they spoke about OH having a blood test to rule out an infection as a possible cause ‘..of Mr X’s aggressive presentation..’. OH was extremely unhappy and angry and wanted to know who said he was aggressive etc etc.
Does anyone on here know where I stand in terms of confidentiality? As it is, I feel totally on my own. If I need to speak to anyone about how my husband is in the future, I feel I can’t trust that whatever I say won’t be reported back to him. I just feel so alone and sort of ‘betrayed’ if that doesn’t sound too dramatic. Sorry for such a long post.