Dear Jodie
I applauded you as I read your link. The day must come when we all accept that the ability to compare and contrast is of the essence.
Best bit for me,personally and with which I have struggled over the last couple of years is the statement: "At present a definitive diagnosis is usually only possible after death".
Because I have asked, if you have 99 people declared dead as a result of .... numerous conditions ... but not often diagnosed as having even had a dementia, then how many of those people were previously diagnosed with A DEMENTIA?/??///???
Don't know as yet. But am beginning to ask same question again and again.
How many people having been DIAGNOSED (rude word, in my own personal vocabulary) as having a Dementia before their death, have ever undergone the post post postmortem establishing that dementia. A post-mortem only looks at the cause of death, which may be pneumonia or another visibly obvious to the post-mortem-conductor cause of death.
But those of us who feel there are more contributory factors, still need to ask further questions.
That is where I am at, today,in the understanding of dementia.
Personal, yes, and not revealing much at the moment. But something that I am following ....
Katie