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Expert Q&A: Rare dementias - Tues 3 March, 3-4pm
Our next expert Q&A will be on the topic of rare dementias. It will be hosted by Nikki and Seb from Rare Dementia Support. If you have any questions about rare dementias, they will be here to answer them on Tuesday 3 March between 3-4pm.
You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.
Recommended thread Compassionate Communication with the Memory Impaired
- Thread starter Grannie G
- Start date
Thank you so much for posting this, Sylvia. This is a lot of what I needed. Sadly I think I've broken about half of the rules, at one time or another. 
That is excellent. Thanks.
I wonder if it or anything with similar content is available in a AS Fact Sheet?
I hope a clickable link direct to the source of that stuff follows.
http://www.agelessdesign.com/Library/InfoManage/Zoom.asp?InfoID=296&RedirectPath=Add1&FolderID=104%20&SessionID={4BDB4EEA-8C78-4490-BE42-959F5AFFB897}&InfoGroup=Main&InfoType=Article&SP=2
I wonder if it or anything with similar content is available in a AS Fact Sheet?
I hope a clickable link direct to the source of that stuff follows.
http://www.agelessdesign.com/Library/InfoManage/Zoom.asp?InfoID=296&RedirectPath=Add1&FolderID=104%20&SessionID={4BDB4EEA-8C78-4490-BE42-959F5AFFB897}&InfoGroup=Main&InfoType=Article&SP=2
I've created a more manageable web address for it: http://www.tinyurl.com/compcomms. Easier to read and type! Pam
Or, of course, the links that were already in the thread
e.g http://forum.alzheimers.org.uk/showpost.php?p=422783&postcount=90
Incidentally, please remember if you want to post this elsewhere to get permission.
Pam - did your parish magazine publish this (apologies if I missed that info)?
e.g http://forum.alzheimers.org.uk/showpost.php?p=422783&postcount=90
Incidentally, please remember if you want to post this elsewhere to get permission.
Pam - did your parish magazine publish this (apologies if I missed that info)?
Not yet - must have another shot at it, having got the permission! After various to-and-fro communications, she published a page I wrote about AZ in general (as counterblast to the silly jokey piece the previous month) in which I gave contact info for AS and the local (general) carers group. Last time I spoke to my contact at the carers group she said they'd had someone ring to get support who'd read about it in our village parish mag, so I felt very pleased about that! Pam
I agree . Ive been recommending this thread quite a lot to new members
As well as Sylvia's thread .
Thank you Sylvia - I saw it a while ago and thought how useful it would be but didn't have time to print it, then of course forgot!! It answers some questions but of course not all, however those usually come from TP members anyway. So have now printed it off and will give copies to family, friends etc. Many thanks. Take care. Sox
Thank you Grannie G, I hadnt seen it either, and really good to read. A lot of it comes naturally but see there is room for improvement!!!
Coletta
Coletta
This is VERY helpful - bit interestingly, didn't come up at all when I was searching the forums for advice on how to handle repetitions! This is just the sort of thing I was looking for.
Sorry to be repeptitive
but I did ask if this thread can be stickied a while back, - don't know who's responsible to sticky something or if anyone can but I wouldn't know how to do it.Perhaps one of the moderators can.
Thanks
Sue
I agree with you, this thread should be added to the stickies,I frequently give the link to this thread when I spot someone may be helped by it or needs to see a way how to, but like most people I dont read every thread or postSorry to be repeptitive
Perhaps one of the moderators can.
Thanks
Sue
SO please would one of you Lovely mods make this a sticky
please please PLEASE
Unfortunately, we have discovered that having a lot of stickies makes it very difficult for new users to find their way around the forum (the useability testing we conducted highlighted this problem). That's why we have progressively reduced the number of stickies in favour of providing the links in a single stickied thread.
Specifically this thread Really Useful Resources has a number of different, well, really useful resources)) contained within it, including this one.
Specifically this thread Really Useful Resources has a number of different, well, really useful resources
)) contained within it, including this one.
I printed this a while back and have it in my activity folder. It is useful to have available to show to staff members in the care homes, especially the younger ones.
