I got my Diagnosis on the 2 November this year so not quite 2 weeks ago finding it hard to to come to terms with the fact that i have got it
Hi there @Rushdenboy . Yes I understand your reaction completely. I have been diagnosed with Alzheimers. After a short period I shook myself up and decided to sort out things whilst I could. All legal things like POA , DVLA, Will and so on sorted out or upgraded. I make no secret of the diagnosis and all friends and family are aware. I sat with a large writing pad and made up a bucket list of things I still want to achieve (I completed the Manchester Marathon recently - so that is ticked off the list). I have taken up painting and am learning to crochet. Covid has curtailed the bucketlist somewhat, but I intend to get the very best out of life while I can. I also have a ****itbucket for things I no longer can do or want to do.
It can be a lonely and frustrating place after diagnosis. Communication between health professionals leaves a lot to be desired and you can easily fall through the net and get forgotten. Luckily after over 40 years as a health professional myself I am able to navigate 'the system' - but I have still had to fight my own corner on several occasions. Do not be afraid to do so yourself.
I have a support worker from the Alzheimers society and the local Carers Group have been invaluable. My husband has a Zoom meeting with our local group on Thursday and he has had much support from them - please do contact your local group.
Please come back and post when you feel able. There will be many on here with practical help and never ever be afraid to ask.
hello @Rushdenboy
a warm welcome to DTP
I guess you are feeling all over the place right now .... take time to breathe and let the dust settle ... and chat with family and friends, don't keep this news to yourself
it's good you have joined us here as members are wonderfully supportive and helpful ... so post whenever and whatever, someone will be here to chat
Hi there @Rushdenboy . Yes I understand your reaction completely. I have been diagnosed with Alzheimers. After a short period I shook myself up and decided to sort out things whilst I could. All legal things like POA , DVLA, Will and so on sorted out or upgraded. I make no secret of the diagnosis and all friends and family are aware. I sat with a large writing pad and made up a bucket list of things I still want to achieve (I completed the Manchester Marathon recently - so that is ticked off the list). I have taken up painting and am learning to crochet. Covid has curtailed the bucketlist somewhat, but I intend to get the very best out of life while I can. I also have a ****itbucket for things I no longer can do or want to do.
It can be a lonely and frustrating place after diagnosis. Communication between health professionals leaves a lot to be desired and you can easily fall through the net and get forgotten. Luckily after over 40 years as a health professional myself I am able to navigate 'the system' - but I have still had to fight my own corner on several occasions. Do not be afraid to do so yourself.
I have a support worker from the Alzheimers society and the local Carers Group have been invaluable. My husband has a Zoom meeting with our local group on Thursday and he has had much support from them - please do contact your local group.
Please come back and post when you feel able. There will be many on here with practical help and never ever be afraid to ask.
Hithank you to very one who has replied to my post the idea of a bucket is great I will try that what guide lines did you use if any Ie cost practicality and did you have a time limit sorry if the question seems silly to you but I would not want to put an item on my list that i could not achieve Ie rock climbs swimming with sharks and dolphins as you can see this involve flying abroad
Rushden boy
Dave
Hi Blossom 50 I live with my wive in Northamptonshire My 3 daughters live 26 miles away in Peterborough but we see the quite a lotHi
Just wondering if you live with family or if they are nearby for you. Whoever is close to you will need a lot of support too.
Thank you Dunroamin & Rushdenboy - it is very helpful as a carer to have such insights from your posts. Regarding travel, I would enthusiastically encourage you to do so if that is your desire, and assuming travel restrictions reduce soon. My partner has Alzheimer's, and we travelled frequently and only stopped when she lost her mobility from osteoarthritis and other complications. We both always loved travel, and that love remained with her, travelling to Australia three years in a row after diagnosis, and many shorter trips to Europe. Regarding insurance, we always took the risk and only relied on EHIC for Europe trips, and for Australian trips on the reciprocal health agreement between UK and Australia.Hi there @Rushdenboy . Yes I understand your reaction completely. I have been diagnosed with Alzheimers. After a short period I shook myself up and decided to sort out things whilst I could. All legal things like POA , DVLA, Will and so on sorted out or upgraded. I make no secret of the diagnosis and all friends and family are aware. I sat with a large writing pad and made up a bucket list of things I still want to achieve (I completed the Manchester Marathon recently - so that is ticked off the list). I have taken up painting and am learning to crochet. Covid has curtailed the bucketlist somewhat, but I intend to get the very best out of life while I can. I also have a ****itbucket for things I no longer can do or want to do.
It can be a lonely and frustrating place after diagnosis. Communication between health professionals leaves a lot to be desired and you can easily fall through the net and get forgotten. Luckily after over 40 years as a health professional myself I am able to navigate 'the system' - but I have still had to fight my own corner on several occasions. Do not be afraid to do so yourself.
I have a support worker from the Alzheimers society and the local Carers Group have been invaluable. My husband has a Zoom meeting with our local group on Thursday and he has had much support from them - please do contact your local group.
Please come back and post when you feel able. There will be many on here with practical help and never ever be afraid to ask.
welcomeHi , I have just been diagnosed with Alzheimers at the age of 51. I am fit and healthy.