1. Expert Q&A: Benefits - Weds 23 October, 3-4pm

    Our next expert Q&A will be on the topic of benefits. It will be hosted by Lauren from our Knowledge Services team. She'll be answering your questions on Wednesday 23 October between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

Come and say hi! Mum recently diagnosed

Discussion in 'Recently diagnosed and early stages of dementia' started by Kellypc, Sep 15, 2019.

  1. Kellypc

    Kellypc New member

    Sep 14, 2019
    7
    Hello. Mum was formally diagnosed with Alzheimers and PCA (bensons syndrome) recently and is on medication. Shes still working but increasingly general day to day activities are becoming a struggle. She called me yesterday and said that for a few moments at work she couldn't remember where she was. It's tough isn't it? Not being able to fix it for her. Anyway got a feeling I could be a regular on here so thought I'd come and say hi... hello everyone:)
     
  2. DogMom

    DogMom New member

    Sep 15, 2019
    2
    Hi Kelly, I have just joined to (I’m Claire by the way - picked a stupid screen name, didn’t I ! ). My mum was just diagnosed a couple of weeks ago; and though it’s not a shock to us, it’s been some time since we began to suspect dementia, it’s still floored us. Us is myself and my father. Both Mum and dad are in their early 80’s, and dad is fit and very alert and active, But I am thinking about getting them practical support for daily life, Mum though is adamant she doesn’t want anyone coming into the house, to clean, bring the shopping etc etc... so it’s far from straight forward at present, even though they can readily afford help and it would benefit them both. Our story is likely going to be similar, so I thought I’d say hello. C x
     
  3. canary

    canary Registered User

    Feb 25, 2014
    10,548
    Female
    South coast
    Hello @Kellypc and welcome to DTP

    Do have a mooch around and feel free to join in the conversations. This is a very supportive group and nothing is off limits
    :)
     
  4. DesperateofDevon

    DesperateofDevon Registered User

    Jul 7, 2019
    1,159
    E8E405C2-0CAE-4488-A913-DA5D5461DEB2.jpeg
    Hindsight is a wonderful gift that this forum gives you the chance to take advantage of, in the form of others experiences.
    Really is in my case, do as I say not as I did!!!
    I really didn’t handle situations well at times. Hindsight as I say is a wonderful thing.
    At least with this forums help you can avoid some of the pitfalls, & have a wealth of experience & knowledge to dip into.
    Much love to you both

    Actually I like @DogMom - I totally get that
     
  5. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    69,586
    Kent
    Welcome to Dementia Talking Point @Kellypc. You`ve found it at the best time, just soon after your mother has been diagnosed.

    It`s not good news for either of you and it`s good you are trying from the beginning to try to find ways to help her.

    I hope you find the forum helpful and supportive.
     
  6. Kellypc

    Kellypc New member

    Sep 14, 2019
    7
    Hi claire! Thanks so much for your response and sorry to hear we are in a similar boat... mums under 70 so reasonably young but over the last few months shes realising shes getting worse. Heartbreaking! Just trying to arrange some good times for her now. A nice holiday for me and her, meeting with old friends etc. Hooe to chat soon x
     
  7. Kellypc

    Kellypc New member

    Sep 14, 2019
    7
    Welcome to Dementia Talking Point You`ve found it at the best time, just soon after your mother has been diagnosed.

    It`s not good news for either of you and it`s good you are trying from the beginning to try to find ways to help her.

    I hope you find the forum helpful and supportive.

    Thank you already people seem very supportive x
     
  8. Kellypc

    Kellypc New member

    Sep 14, 2019
    7
    Thank you! Really appreciate it x

    Do have a mooch around and feel free to join in the conversations. This is a very supportive group and nothing is off limits
    :)[/QUOTE]
     
  9. Rosserk

    Rosserk Registered User

    Jul 9, 2019
    257
    Hi Kelly

    I’m pretty new here but the help and support has been amazing! Any queries I have are answered within minutes, where else could you get that type of service. Sending you a hug xx
     
  10. DesperateofDevon

    DesperateofDevon Registered User

    Jul 7, 2019
    1,159
    I have staggered around struggling for years & wish I’d found & used this wonderful forum before I hit rock bottom!
    Yep no subject off limits here & the honesty is amazing as our the people
    x
     
  11. Kellypc

    Kellypc New member

    Sep 14, 2019
    7
    Sorry to hear you've been struggling x
     
  12. Kellypc

    Kellypc New member

    Sep 14, 2019
    7
    Thank you! Already feel like I'm not so quite alone!
     
  13. Kellypc

    Kellypc New member

    Sep 14, 2019
    7
    Hi claire. I like he screen name btw. Sorry to hear of your situation too, it's all a little bit **** isnt it? Just trying my best to create as many happy memories for mum that I can before she really deteriorates x
     
  14. Ronniescraft

    Ronniescraft New member

    Tuesday
    1
    Hi Ladies, my Dad has been diagnosed with Early stage Alzheimers this year & I'm new here too. I think we’ll all have a lot of questions. Dad lives 90 mins from my sister & I in his own so we’re going to have to keep on top of things. Mostly word blocking & short term memory at the moment but he knows he’s getting worse.
     
  15. DesperateofDevon

    DesperateofDevon Registered User

    Jul 7, 2019
    1,159
    once I got a care package in place for Mum it became easier but it’s all swings & roundabouts!

    I like to have contingency plans for my contingency plans!
    It’s how I cope!!
    Xx
     
  16. Weemerseymac

    Weemerseymac New member

    Nov 7, 2018
    4
    Hi everyone.
    This is my first post here so hoping to get some moral support. Apologies if it's a bit long winded.
    I am at my wit's end. My Mum who was diagnosed last Nov is pushing me to the limits (or maybe I'm just to sensitive). I moved in to care for Mum last September when Dad was hospitalised (he was then moved to a care home and died recently) My brother who lives 250+ miles away is no help. He is semi retired, works 3 days a week and visits once a month for 3 or 4 nights (I go back to my own home) and this is the highlight of my Mum's month. I've given up my job, as I was unable to cope caring for her 24hrs a day and going out to work (at a job I loved). I have arranged all sorts of social activities and visitors for her but still she finds fault with me. My brother has always been the blue eyes and she witters on to him and his new partner about all sorts. They are very much on the peripheral telephoning her 2 or 3 times a week. The only time they communicate with me is by email or text and it's only when they want something! The comments I've received when I've asked for help are 'well if you can't cope we need to get someone in who can'! I'm trying to save my Mum money so she has enough for a decent care home when the time arrives but I'm being made to feel incompetent especially as my background was in Social Care.
    Oh there are a million things I would love to get off my chest but feel that's enough for now. This post was brought on by the fact my brother and partner are on their way north to see Mum and rang to say they were caught in traffic. Mum is on the phone telling partner that she had sore knees and 'no one' ( only me in the house) believes her!
    Does anyone else feel taken for granted?
     
  17. TNJJ

    TNJJ Registered User

    May 7, 2019
    456
    Yep! I don’t live with dad but I am at his 3days a week and then care for mum 1day a week and then I go home to mine for the other 3 days..
    Like you I organise dads carers (used to do dads personal care but it got too much.He hardly weight bears) I also have a background of nursing and social care. I do his shopping cleaning etc..
    Pity your brother and partner don’t do some more.(I’m an only child) Then he might not have so much to say!
    I also gave up work to look after dad.I got fed up with the phone calls from carers.
     
  18. DesperateofDevon

    DesperateofDevon Registered User

    Jul 7, 2019
    1,159
    Yes yes yes!!
    To quote from when Harry met Sally !
    I’m the butt of little jibes etc
    so my lovely I smiled when I read your post- as I have nick named my husband golden balls - he can do no wrong & gets all the praise !
    Meanwhile I’m the one at the rock face!!! Doing all the visits etc

    gotta smile as I have found waterproof mascara doesn’t work & you end up looking like a panda.Um.... that’s given me a thought my mum likes pandas.....
     

Share This Page

  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.
  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.