My mum is driving me round the bend and I don't know what is going to happen next.
She had been receiving day care 5 days but all of our local homes said she was too hyper (she is to be fair to them). She is unable to take anti psycotics as they set off a series of seizures which have left her with epilepsy. She is wired all day and struggles to sleep a full 8 hrs at a sensible hour even with the help of zopiclone (prescribed sleeping tablet). I had a full nights sleep on Thursday night but since Friday 9 am I have slept about 9 hours in total.
This is having a huge effect on me. I have no life whatsoever. I spend my days on a laptop which I pick up and put down to see to her, and thats usually every 5-10 minutes. I have been by her side every day since 2009 without a break whatsoever. Even now as I type this I am interrupted time and time again so if it is disjointed, I apologise.
I am not sure what happens next and what options are available to me if any at all? I feel like complaining about both her NHS care and social care as they are both inadequate. Whilst my mum was forgetful before she started taking meds in 2008, she wasn't this wild crazy anxious energetic person. Mums forgetfulness is no longer the problem, her wild energetic behaviour is. As for Social care, well they just don't seem to care full stop.
The last 3 years in particular have been a struggle, but I feel like I am close to losing the plot myself these last few weeks. My own health is poor as I have no time for myself. I am about 100lb overweight and the stress is killing me.
If my mum was just calmer it would be so much easier. I could have a bit of time to myself and relax.
If the local care homes don't want her as a day patient, how would they handle her as a full time patient? Is there some super knock out drug that comes into circulation upon us handing over a load of money to them?
She is now at a point where she has no memory. What will this mean going forward? In my mind that must mean that her overall health will deteriorate from here on in but with the meds she is on she has never been physically fitter in term of energy levels and mobility.
I have a meeting with her specialist this Wednesday. I'm building myself up thinking if I go batsh!t crazy at him I will get something from it, but in reality I know I probably walk out of there feeling even more dejected than I do now.
Nobody in my life understands this situation. They are all hoodwinked in to believing that some super pill is available and some magic team of helpers take care of her with a click of my fingers.
She had been receiving day care 5 days but all of our local homes said she was too hyper (she is to be fair to them). She is unable to take anti psycotics as they set off a series of seizures which have left her with epilepsy. She is wired all day and struggles to sleep a full 8 hrs at a sensible hour even with the help of zopiclone (prescribed sleeping tablet). I had a full nights sleep on Thursday night but since Friday 9 am I have slept about 9 hours in total.
This is having a huge effect on me. I have no life whatsoever. I spend my days on a laptop which I pick up and put down to see to her, and thats usually every 5-10 minutes. I have been by her side every day since 2009 without a break whatsoever. Even now as I type this I am interrupted time and time again so if it is disjointed, I apologise.
I am not sure what happens next and what options are available to me if any at all? I feel like complaining about both her NHS care and social care as they are both inadequate. Whilst my mum was forgetful before she started taking meds in 2008, she wasn't this wild crazy anxious energetic person. Mums forgetfulness is no longer the problem, her wild energetic behaviour is. As for Social care, well they just don't seem to care full stop.
The last 3 years in particular have been a struggle, but I feel like I am close to losing the plot myself these last few weeks. My own health is poor as I have no time for myself. I am about 100lb overweight and the stress is killing me.
If my mum was just calmer it would be so much easier. I could have a bit of time to myself and relax.
If the local care homes don't want her as a day patient, how would they handle her as a full time patient? Is there some super knock out drug that comes into circulation upon us handing over a load of money to them?
She is now at a point where she has no memory. What will this mean going forward? In my mind that must mean that her overall health will deteriorate from here on in but with the meds she is on she has never been physically fitter in term of energy levels and mobility.
I have a meeting with her specialist this Wednesday. I'm building myself up thinking if I go batsh!t crazy at him I will get something from it, but in reality I know I probably walk out of there feeling even more dejected than I do now.
Nobody in my life understands this situation. They are all hoodwinked in to believing that some super pill is available and some magic team of helpers take care of her with a click of my fingers.