Heartbreaking for you all. I don't believe I have ever seen a crueller disease than this one, robbing you of your loved one hour by hour, day by day, week by week. I pray you all find peace soonHi. Update, been in twice today. By 125pm he had 75ml, I tried him myself with 2 half spoons of thickened fluid and he choked really bad. Stayed with him a while until he could clear it, it took ages and managed to settle him and he went to sleep. Also went at 8pm and by this point he had a total of 150ml so I gave another 2 half spoons but it worse than the previous time. Just couldn't get shut of it out of his throat, when he was gulping you could hear this really weird splash. Just kept coughing and bubbling, I can see the fluid getting less and less now day by day but who knows, there are so many ups and downs with this illness. Mum and I were really shocked at his hip bones, horrific, no wonder he is in pain when he is moved, he is a skeleton. Poor Dad. He was doing more staring and talking to thin air tonight , couldnt understand him though which is a shame as one time he smiled and pointed. He seemed the weakest I have seen him so far, mum and I cried alot tonight, my eyes are sore!! Sadly we can't hold his hands, he does this thing were he pulls on you and squeezes, he even does it to his own hands, it actually hurts! The dementia blanket he has is a blessing. Once we settled him tonight and he looked comfortable he started to go to sleep, I whispered in his ear 'love you Dad, love you so much' and even though his mouth was wide open the corners of his mouth broke for a split second into a smile and then it was gone. Broke my heart.