Following on from my previous thread about Mum being at end of life we requested a CHC review for full funding as the consultant in the hospital recommended we try for it as he was discharging her back to her CH on a 'comfort only' basis. All medication for mum was withdrawn and she was sent back to 'die with dignity in her own surroundings' as his words.
We had the report back from the CPN and am disgusted. Completely disgusted.
She scored the following
Behaviour - no needs. Bear in mind mum is often upset and aggressive when given personal care, her nails are dirty and uncut as they can't get near her to cut them without her being angry and agitated. She hates anyone touching her feet or legs. Some days when we visit she will be annoyed and refuse to even look at us. She hasn't been out of bed since being discharged from hospital as she shout and screams whilst being hoisted.
Cognition - moderate. Mum has NO cognition at all. Cannot express any needs whatsoever, has no memory long or short term and cannot recognise anyone in the family. She is often withdrawn, has no orientation to place or time at all. She just simply exists. Says she needs help in choosing clothing SHES NOT BEEN DRESSED IN ANYTHING OTHER THAN A NIGHTIE SINCE DECEMBER
Psychological needs - low. It says she is encouraged to take part in social activities. SHE HASNT BEEN OUT OF BED SINCE DECEMBER. She is often annoyed, you can see it in her face. She has mood swings and is different every time we see her. Sometimes happy, sometimes not.
It says frequent hospital admissions, NONE. She had had 9 admissions to hospital in the last year.
It says she requires SUPPORT in personal care. She cannot do ANYTHING for herslef and is washed in bed despite the report saying she is showered. They change her sheets by rolling her to the side as she gets angry and upset if hoisted? SHE HAS NOT BEEN OUT OF BED SINCE DECEMBER!
Communication - moderate. Says she can answer appropriately to yes and no. Those are all the words she says and she CANNOT Answer appropriately. She replies yes if you ask her a leading question and responds to either a positive or negative tone of voice.
Mobility - high. I think she should be severe. SHE HASNT BEEN OUT OF BED SINCE DECEMBER. She cannot weight bear and is starting to show signs of contractures.
Nutrition - low. Says she requires support and encouragement to eat. She is hand fed puréed food and thickened drinks. She will not attempt to feed herself at all and cannot see anything that is in front of her. Her weight is dropping steadily having lost 7 kg in a month.
Continence - moderate. Says she is toileted on request. SHE CANNOT SPEAK TO ASK TO GO AND DID I MENTION SHE HAS NOT BEEN OUT OF BED SINCE DECEMBER? She is doubly incontinent, wears pads that are left open underneath her. She suffers from either constipation or diarrhoea.
Skin integrity - moderate. Tend to agree. She is on an air mattress and turned regularly. Shows pink areas on buttocks and back.
Breathing - no needs. Have to agree.
There is a list of medication that she's supposedly on but these were all withdrawn by the hospital consultant so that's incorrect.
I'm so angry, so angry. She has had a better score than when they wanted her out of her last residential home as 'they couldn't manage her needs'. It's a joke. I didn't know dementia got better over time and the scores improved.
I have requested a meeting with the social worker as this is unacceptable. Either the care home are lying about her or the CPN is. I want to get to the bottom of this.
Any tips on how to deal with this? I'm sure we aren't the only ones that have experienced this.
We had the report back from the CPN and am disgusted. Completely disgusted.
She scored the following
Behaviour - no needs. Bear in mind mum is often upset and aggressive when given personal care, her nails are dirty and uncut as they can't get near her to cut them without her being angry and agitated. She hates anyone touching her feet or legs. Some days when we visit she will be annoyed and refuse to even look at us. She hasn't been out of bed since being discharged from hospital as she shout and screams whilst being hoisted.
Cognition - moderate. Mum has NO cognition at all. Cannot express any needs whatsoever, has no memory long or short term and cannot recognise anyone in the family. She is often withdrawn, has no orientation to place or time at all. She just simply exists. Says she needs help in choosing clothing SHES NOT BEEN DRESSED IN ANYTHING OTHER THAN A NIGHTIE SINCE DECEMBER
Psychological needs - low. It says she is encouraged to take part in social activities. SHE HASNT BEEN OUT OF BED SINCE DECEMBER. She is often annoyed, you can see it in her face. She has mood swings and is different every time we see her. Sometimes happy, sometimes not.
It says frequent hospital admissions, NONE. She had had 9 admissions to hospital in the last year.
It says she requires SUPPORT in personal care. She cannot do ANYTHING for herslef and is washed in bed despite the report saying she is showered. They change her sheets by rolling her to the side as she gets angry and upset if hoisted? SHE HAS NOT BEEN OUT OF BED SINCE DECEMBER!
Communication - moderate. Says she can answer appropriately to yes and no. Those are all the words she says and she CANNOT Answer appropriately. She replies yes if you ask her a leading question and responds to either a positive or negative tone of voice.
Mobility - high. I think she should be severe. SHE HASNT BEEN OUT OF BED SINCE DECEMBER. She cannot weight bear and is starting to show signs of contractures.
Nutrition - low. Says she requires support and encouragement to eat. She is hand fed puréed food and thickened drinks. She will not attempt to feed herself at all and cannot see anything that is in front of her. Her weight is dropping steadily having lost 7 kg in a month.
Continence - moderate. Says she is toileted on request. SHE CANNOT SPEAK TO ASK TO GO AND DID I MENTION SHE HAS NOT BEEN OUT OF BED SINCE DECEMBER? She is doubly incontinent, wears pads that are left open underneath her. She suffers from either constipation or diarrhoea.
Skin integrity - moderate. Tend to agree. She is on an air mattress and turned regularly. Shows pink areas on buttocks and back.
Breathing - no needs. Have to agree.
There is a list of medication that she's supposedly on but these were all withdrawn by the hospital consultant so that's incorrect.
I'm so angry, so angry. She has had a better score than when they wanted her out of her last residential home as 'they couldn't manage her needs'. It's a joke. I didn't know dementia got better over time and the scores improved.
I have requested a meeting with the social worker as this is unacceptable. Either the care home are lying about her or the CPN is. I want to get to the bottom of this.
Any tips on how to deal with this? I'm sure we aren't the only ones that have experienced this.