Hi all, new member here and like many others I guess I just need some advice and others to talk to in a similar situation.
I quit my job last year to care for my mum who has FTD, 6 weeks ago she had a fall and broke her shoulder (I'm doing this the short story way to get to the point) and ended up in hospital. She has now been moved to a specialist dementia ward within the NHS and it has been decided (by me as well) that she needs 24 hour care, somethiing that I cannot do (young family etc). She has today been refused CHC which I knew would happen, she isn't aggressive but will score high on the other things so I am going to ask for the results and check for myself but it isn't a surprise. She has been awarded FNC which I assumed would help towards the care home bills, it does not, that just gets swallowed up and makes no difference at all to finances, not even the top-up fee negotiations. I am fairly sure the care home will not use this extra money to give any extra care!
I have a choice of 4 homes to look at (those with EMI beds available) and I have looked at 3 and hated them all.
Mum has her own house which we are going to rent and use the deferred payment option to at least get some money towards the fees and of course if you sell the house it puts you over the capital limit and you then have to pay the upper care home fee amount.
My questions are this -
1. How long do I have to find mum a care home, can they kick mum out of where she is or can I sort of drag my feet because she is settled there and I know she is getting cared for properly, can the NHS put a time limit on how long mum can stay there?
2. The social worker is coming tomorrow and the CHC will be discussed and I already know they haven't got any of mums previous medical records for the assessment, shouldn't that of been done?
3. I am now on my **** so to speak, apart from signing on is there any other help offered for carers who find themself in this situation through no fault of their own? I honestly feel like the pressure outside of my head is going to crush it.
4. Top-up fee's, we are expected to pay this (it gets a bit complicated because of the deferred payment etc), my wife works 2 jobs (to allow me to quit and care for mum) and I have no income now, how the hell can they expect us to pay £50 a week which is basically to subsidise the shortfall of the council fee's?
I have other questions and they will arrive in my brain throughout my stay here. Yes I do have LPOA for both health and finances for mum.
Any help appreciated, and hi!
I quit my job last year to care for my mum who has FTD, 6 weeks ago she had a fall and broke her shoulder (I'm doing this the short story way to get to the point) and ended up in hospital. She has now been moved to a specialist dementia ward within the NHS and it has been decided (by me as well) that she needs 24 hour care, somethiing that I cannot do (young family etc). She has today been refused CHC which I knew would happen, she isn't aggressive but will score high on the other things so I am going to ask for the results and check for myself but it isn't a surprise. She has been awarded FNC which I assumed would help towards the care home bills, it does not, that just gets swallowed up and makes no difference at all to finances, not even the top-up fee negotiations. I am fairly sure the care home will not use this extra money to give any extra care!
I have a choice of 4 homes to look at (those with EMI beds available) and I have looked at 3 and hated them all.
Mum has her own house which we are going to rent and use the deferred payment option to at least get some money towards the fees and of course if you sell the house it puts you over the capital limit and you then have to pay the upper care home fee amount.
My questions are this -
1. How long do I have to find mum a care home, can they kick mum out of where she is or can I sort of drag my feet because she is settled there and I know she is getting cared for properly, can the NHS put a time limit on how long mum can stay there?
2. The social worker is coming tomorrow and the CHC will be discussed and I already know they haven't got any of mums previous medical records for the assessment, shouldn't that of been done?
3. I am now on my **** so to speak, apart from signing on is there any other help offered for carers who find themself in this situation through no fault of their own? I honestly feel like the pressure outside of my head is going to crush it.
4. Top-up fee's, we are expected to pay this (it gets a bit complicated because of the deferred payment etc), my wife works 2 jobs (to allow me to quit and care for mum) and I have no income now, how the hell can they expect us to pay £50 a week which is basically to subsidise the shortfall of the council fee's?
I have other questions and they will arrive in my brain throughout my stay here. Yes I do have LPOA for both health and finances for mum.
Any help appreciated, and hi!