My father is in a care home, was at home for a few months with 2 carers 4 times a day, then NHS said they didn't have care staff so dad went into a home. At that point I was at burn out having looked after both parents for 10 years with no help - mum had very violent behaviour for a number of years but was considered not to qualify for CHC until dad went into home.
Dad has senile dementia and has not been referred to a memory clinic or anywhere else 'for clinical reasons' it said on form. He suffers from acute kidney injury, cannot walk, is losing the use of his arms, has to be hoisted, is doubly incontinent, has to have soft food. Is at risk of choking, has no idea how much he has eaten or drunk, has osteoporosis, partial hip replacement, arthritis, cannot say when he is in pain, is losing speech, hallucinates. Cannot turn on tv/change channel, cannot read newspaper any more. Is at high risk of sores - has had them, when they leave him in bed he has to be turned every 2 hours. He will always try to answer a question with something positive that he thinks people want to hear. I'm sure I have forgotten some more things wrong with him.
He has CHc but they now want to take it away. My query is that I have not been given access to the care home notes nor GP notes, I have PoA and requested them some time ago. When i ask the staff they always tell me that he is fine, when he clearly is not. He has suspected heart problems and history of suspected TIAs. I see him with his mouth blue - he has collapsed in the past.
I am not told what meds he takes, I don't know if he has a care plan. The situation is very worrying, I don't feel that I can put a case for him to retain funding.
The nhs want to send him back home for me to look after on my own, they informally sugggested that I could get £100/week contribution. I have my own health challenges and good carers are pretty much impossible to find. His behaviour is controlling which is problematic. If he comes back home, I won't last very long, dad has no idea (or cares any more) about the serious injuries that lifting him etc has caused.
The original review meeting was a shambles as the care home did not send a medically qualifies member of staff. We now face going back to what I think is stage 1 with social services present.
I think that I should be given access to his records before any meeting, I seem to be ignored on this.
Any thoughts? I am desperately worried.
Dad has senile dementia and has not been referred to a memory clinic or anywhere else 'for clinical reasons' it said on form. He suffers from acute kidney injury, cannot walk, is losing the use of his arms, has to be hoisted, is doubly incontinent, has to have soft food. Is at risk of choking, has no idea how much he has eaten or drunk, has osteoporosis, partial hip replacement, arthritis, cannot say when he is in pain, is losing speech, hallucinates. Cannot turn on tv/change channel, cannot read newspaper any more. Is at high risk of sores - has had them, when they leave him in bed he has to be turned every 2 hours. He will always try to answer a question with something positive that he thinks people want to hear. I'm sure I have forgotten some more things wrong with him.
He has CHc but they now want to take it away. My query is that I have not been given access to the care home notes nor GP notes, I have PoA and requested them some time ago. When i ask the staff they always tell me that he is fine, when he clearly is not. He has suspected heart problems and history of suspected TIAs. I see him with his mouth blue - he has collapsed in the past.
I am not told what meds he takes, I don't know if he has a care plan. The situation is very worrying, I don't feel that I can put a case for him to retain funding.
The nhs want to send him back home for me to look after on my own, they informally sugggested that I could get £100/week contribution. I have my own health challenges and good carers are pretty much impossible to find. His behaviour is controlling which is problematic. If he comes back home, I won't last very long, dad has no idea (or cares any more) about the serious injuries that lifting him etc has caused.
The original review meeting was a shambles as the care home did not send a medically qualifies member of staff. We now face going back to what I think is stage 1 with social services present.
I think that I should be given access to his records before any meeting, I seem to be ignored on this.
Any thoughts? I am desperately worried.
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